Has Anyone Has Their Symptoms Go Away Almost Completely And Then Come Back?
My husband was told in Feb that he had a movement disorder in the Parkinson’s family. He’s finally seeing a movement specialist next month. From May 15 until last night he’s had about 65 or 66 falls. Last night we had to call the squad again. Has anybody out there had a time where their symptoms have basically vanished? On August 6, he got out of bed and was able to walk almost completely normally and that continued until probably the last week or so. This morning it was really bad. He was very… read more
I come with wonderful suggestions!
I am the designated Parkinson's patient and my husband is the brilliant organizer that gets to do this with me. I do have advanced Parkinson's but I have only been diagnosed for a year. My husband got me my first Parkinson's tool last year. It is my favorite thing. It is a bed rail that has a motion light on the side. It is fantastic for those late night adventures! As a legendary ground surfer of many years, I highly recommend it!!
Your fine I mess up my pills from time to time too and I have Lisa ( my partner) double check them but I still mess up! You are 100 right Parkinson’s does suck. I agree with you about your husband needs to get help soon rather then later. I am sure the two of you need each other. I can imagine his frustration it’s stinks! I am keeping you guys in my prayers!
Blessings
DeeMcCarthy
I can't tell you how many times I've told my husband "SEE I TOLD YOU I DON'T HAVE PARKINSON'S "to which he gently and lovingly leans in and wispers in my ear....you are right, but most people don't need carbidopa Levadopa to feel like they don't. 😖
Yesterday I woke up with nausea. I had my head in a bowl before 8am. Why you ask, because even with alarms, pill packs and a diligent husband, I still managed to foul up my meds for a week 😳
and I am well trained in prescription compliance. Did I mention Parkinson's sucks!!
That said, I am a bit concerned that your husband is falling that many times. Number one, I would recommend he stay on the floor. While I have been a ground surfer myself this is excessive! He needs to get this addressed immediately. If he gives you a hard time, as a wife of 46 years AND a Parkinson's patient myself, ask which dress he likes on you for his funeral....falls kill!!
I experienced fluctuations mild to absolutely miserable. For the first 3-4 years I kept telling my wife maybe I am getting better only to be smacked back down to the reality that I have a disease that's not letting go. My fluctuations continue but are definitely less often. I am no longer experiencing those good days it's now become moderate Parkinson problems once in a while but most of the time a fight just to function at all. My struggle to stay positive is also daily , I no longer talk about getting better I talk about doing the best I can. I am continually trying to understand the best way to deal with my diseases . My parkinsons is also accompanied by other serious health problems. My experience has been one of unexpected problems that to be honest are wearing me out. The one thing that you can count on in this world is constantly uncertainty and surprises . Learning to accept that reality helps you to learn how to deal with an ever surprising life with parkinsons. I think everyone's journey is different and the way you deal with those challenges different as well. I do find hearing others stories is very powerful medicine that will help you work on your problems. Finally " the best news" sharing of others experiences comes with very few if any bad side effects. Best wishes!!
Yes, some MyParkinsonsTeam members have experienced fluctuations in their symptoms. One member noted that the effects of Parkinson's disease (PD) can change from one day to the next. For example, one day the medications might work perfectly, and the next day they might not kick in for hours. This inconsistency can make read more
This AI-generated response comes from MyParkinsonsTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.
Phila
Theracycle
Initial Diagnosis