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Do They Really Know Best?

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

I'm starting to think my specialist has no more idea what will work for relief of my symptoms than I do. Anyone else?

September 7 (edited)
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A MyParkinsonsTeam Member

This is also part of my worry when doctors are so quick to treat anxiety, almost above all else; I swear that all they are doing is making us worry less about our symptoms so we bother them less.

September 7
A MyParkinsonsTeam Member

Nigel I agree that so much is a guessing game when it comes to medications . I am fortunate to have a medical team that listens to me and if I question a medication or if it is helping I will stop taking it with their knowledge. I don’t believe in taking one thing to “fix” the side effects of another. Being my own best advocate has served me well.
🌈TheaD

September 7
A MyParkinsonsTeam Member

I had an excellent neurologist who unfortunately relocated. The next one I saw, was also a good neurologist, but very expensive! I went to a third one who came highly recommended.
Despite it being the first time that he saw me, he didn't even do an examination. He asked me why I was there and if I want him to change the medication. I was there for a followup! He then proceeded to tell me to only come back if something serious happened or the medication doesn't work anymore.
Six months later I started falling more regularly and went back. He asked me very rudely what I was doing there!!! Now I'm very hesitant to go see any neurologist again. As Nigel says, do they really know as much as they pretend to?

Bear in mind that, as we don't have NHS, this rude character is a private practitioner!

September 7
A MyParkinsonsTeam Member

I feel like it is all trial and error for me,no one knows better than you,with all the different meds I take I learned which ones work together and which ones don't

September 10
A MyParkinsonsTeam Member

A word or few of advice, which comes from someone who is extra knowledgeable, if you had a diagnosis which has been resolved there is no to put it in the notes of a new doctor. At least in the US, the more diagnoses on your record the more your doctor can get paid; thus the initial questionnaire asks have you EVER had such and such, and everything listed follows you everywhere. As an example my one doctor put in the records which have been past on to every doctor I’ve seen since 2011, every little detail including that he irrigated my ear because he saw a “blockage” of wax. Actually it was a fleck, but what do details matter; the fleck of earwax which feeds 4 generations of doctors. Now, not all doctors are this bad. I’ve known doctors who made house calls to homes where Dad works through the night and Mom has a baby screaming with a fever and an earache. There are truly good doctors. However! If it’s no big deal don’t pass it on. Drop the flecks in a bucket and maybe it will melt and patch some tiny hole. Meanwhile you may keep some of your money for more pressing issues, like paying for current problems associated with more important means. Don’t be bullied into seeing a new doctor for every little thing, a new test because it’s a new test, and “more up-to-date (not to mention far more expensive)or bloodwork done when nothing has changed. Sometimes it’s hard but we deserve to be heard and not simply used to pad the pockets of dear Doctor practicing.

September 8

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