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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Have A Lung Condition That Makes Exercise Difficult? I Have Bronchiectasis. What Has Worked For You?

A MyParkinsonsTeam Member asked a question 💭
Fort Worth, TX
July 25, 2024
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A MyParkinsonsTeam Member

I also have trouble breathing, my doctor met with me and noticed I have very shallow breathing. She has suggested that I exercise deep breathing 4-6 count in and 6-8 count on exhale. It is helping me considerably.

July 25, 2024
A MyParkinsonsTeam Member

My husband has sarcoidoses which sounds a lot like what you have Theresa Baker 2

July 28, 2024
A MyParkinsonsTeam Member

I have hypercapnia, a condition which most closely resembles COPD but which is not caused by by smoking, mold exposure, or any other lung injury. I retain CO2 which leaves less room for oxygen. Unfortunately the condition continues to worsen and I’m already to the point of it becoming difficult to finish a sentence without gasping for air several times.

July 28, 2024
A MyParkinsonsTeam Member

I am really sorry to hear that @A MyParkinsonsTeam Member. My friend died of that. The two may have similarities but they are different. My first realization of something wrong was Flash pulmonary edema with dyspnea. In ER I thought it odd the doctor sat beside me until my granddaughter was suddenly there. She’s and EMT and stayed with me until I was transferred to a bigger hospital. I was was critical but had no clue. But the pulmonologist explained my muscles outside my lungs were restricting the intake of oxygen as well as pushing the CO2 out,.it has continued to worsen.
Teresa

July 28, 2024
A MyParkinsonsTeam Member

The responses to this question lead me to wonder about my own breathing problems. The oxygen finger clip the professionals use shows no problem. Yet I am frequently out of breath with minimal activity. I have always been a mouth breather. My speech therapist is trying to help me use a breathing device.

July 27, 2024

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