Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

When I fall I tell people to leave me alone I'll get and if I need help I'll ask for it does anyone else feel that way

A MyParkinsonsTeam Member asked a question 💭
Huntsville, AL
June 29, 2024
 · 
Reactions

Answer Summary

Members deeply connected over the question of accepting help after a fall, with many sharing the struggle between fierce independence and the... Read more

Members deeply connected over the question of accepting help after a fall, with many sharing the struggle between fierce independence and the reality of living with Parkinson's disease. Several members described hard lessons learned, including serious injuries like broken bones, a cranial bleed, and a fractured finger that came from trying to manage alone, leading many to shift toward accepting help while still guiding how that help is given. A recurring theme was that pride and the fear of losing independence are real, but learning to let others in, whether family or strangers, is an act of self-care, not weakness.

A MyParkinsonsTeam Member

It is pride and its uglier cousin, shame.😞
However, if people could ask two questions before diving in to "help"...they would be;

"Can I help?"

And if "yes"...

"How?"

June 29, 2024 (edited)
A MyParkinsonsTeam Member

Maybe doctors should prescribe these...

June 30, 2024
A MyParkinsonsTeam Member

I tell people the same thing especially because when I fall I could actually damage something and by moving me they could actually cause more damage

July 2, 2024
A MyParkinsonsTeam Member

If I fall and someone asks how can they help me ? I will sometimes suggest by making a cash donation to my wheelchair fund .

June 30, 2024
A MyParkinsonsTeam Member

I’ll gladly take help from anyone who offered it. I do caution them to let me complete my inventory first. I have check to see if everything is working, before I allow anyone to touch me.

June 29, 2024

Related Questions

View All

Does anyone else have an intolerance for air conditioning? I am always freezing even at 74 degrees Fahrenheit.

A MyParkinsonsTeam Member asked a question 💭
Nescopeck, PA

Can some one please please help me … I can’t control my mind and my anxiety

A MyParkinsonsTeam Member asked a question 💭

I really want to know what stage I’m in? Things have taken a turn! I’m really not feeling well.

A MyParkinsonsTeam Member asked a question 💭
Newark, DE

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In