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When I Fall I Tell People To Leave Me Alone I'll Get And If I Need Help I'll Ask For It Does Anyone Else Feel That Way

A MyParkinsonsTeam Member asked a question πŸ’­
Huntsville, AL
June 29
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A MyParkinsonsTeam Member

It is pride and its uglier cousin, shame.😞
However, if people could ask two questions before diving in to "help"...they would be;

"Can I help?"

And if "yes"...

"How?"

June 29 (edited)
A MyParkinsonsTeam Member

Maybe doctors should prescribe these...

June 30
A MyParkinsonsTeam Member

I tell people the same thing especially because when I fall I could actually damage something and by moving me they could actually cause more damage

July 2
A MyParkinsonsTeam Member

If I fall and someone asks how can they help me ? I will sometimes suggest by making a cash donation to my wheelchair fund .

June 30
A MyParkinsonsTeam Member

I was born with stage 3 "MHE" (Multiple Hereditary Exostosis). I won't go into detail, you can look it up online, but I have had 21 bone surgeries due to my disorder. I had my 1st pulmonary embolism at the age of 19, & countless more. Twenty years ago, when I began showing symptoms of a movement disorder, I was initially diagnosed with Huntington's Chorea. Although my neurologist (Dr. Christine) & my husband thought they were out of my sight, I saw my husband collapse to his knees when Dr. Christine first spoke to him. After many tests, my diagnosis was changed to Parkinson's. My husband actually smiled when we were told! My husband's attitude set up our response, whatever happens we will deal with it then, it is not a big deal. Whenever we were in public he would hold my hand, I never felt insecure. I have responded well with C/L, & I have been very blessed with skillful doctors all my life. Since my husband's sudden death 6 years ago, I have had my 2nd knee replacement, emergency surgery for a intestinal blockage, a stroke that initially paralyzed my left side of my body, which resulted in severe osteoarthritis in my left hip, & a "Rectopecy", (twice because the first failed). On this sight, someone once posted, "I would rather have a stroke than PD!" Trust me everyone, "No you would not!" I have gone from a wheelchair, to a walker, now I use a cane when I am away from my home. My best friend of 53 years was recently diagnosed with breast cancer. A young man in England, married with 3 young children, was recently diagnosed with ALS, & if you believe there has been little advancements in PD medications, research the only medication for ALS that most diagnosed with this disease cannot tolerate. I guess what I am trying to say, "Life is what happens when you are making other plans." I was 11 when my grandmother was diagnosed with Pancreatic cancer. She told me, "Anne Kristine when your faith is strong, God will never give you anything you cannot handle." When I look around me, & I believe a person lives a charmed life, it seems nothing bad ever happens to them, I remember my grandmother. I do not envy them, or feel sorry for myself. I feel sorry for them, because they are weak in my God's eyes, & I am strong. PD has given me severe anxiety, insomnia, constipation, depression, gait freezing & falling, yet life is funny, delightful, colorful, sad, & curious, but mostly precious. Focus on your strength. My bad times are when I see my friends & family struggling. Yes, I have anger, which I am trying to resolve. I feel angry at my God, because he took away my foundation suddenly, & unexpectedly. I am rebuilding my new foundation, but at night I miss the strength I felt from the one hand that held mine 6 years, 3 months, & 8 hours ago. Please, accept a helping hand, with gratitude, when it is offered. AK🩷

June 30 (edited)

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