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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Take Creon? A Pancreas Enzyme Therapy?

A MyParkinsonsTeam Member asked a question 💭
Shelbyville, IL
June 19
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A MyParkinsonsTeam Member

Does the C/L digest OK with out Creon? I am worried about side effects. Are you OK without it Kim?

June 19
A MyParkinsonsTeam Member

I take my carbi/levodopa at least an hour before I eat to avoid interactions with protein, which slows down the absorption of the drugs.

June 19
A MyParkinsonsTeam Member

Hi Colleen597, I had non-stop diarrhea for a month. Every day. 2 years ago I had it and was hospitalized. My potassium was very low. It took 4 days to stop the diarrhea and they didn't know what caused it. Jump forward to now. Same thing. So a substitute Doc for me, decided to check my pancreas. Bingo!!! It is super low on enzyme Elastase-1. So I've just started Treatment. I hope there will be no diarrhea in the next few weeks. That will mean the Treatment is going to work. I don't like any of this. I also just started C/L. I'm doing the best I can. I feel like I can conquer the meds and exercise.

June 20
A MyParkinsonsTeam Member

Pancreatitis is awful! Terrible gut pain, diarrhea that is bright yellow (!), and nausea. I was in hospital a week with it. Hope I never have again. All they did was give me morphine for pain and let me sleep a lot. My husband had early stage Parkinson’s and was home alone. I kept telling the Dr that he was by himself and needed help. They did nothing. My husband drove (!) and took care of himself and the dog. He got stopped 3 times for erratic driving, by the same policeman, yet they did nothing to help him. I was so sick and didn’t know who to call. A neighbor looked in on him once but she said he was talking so crazy she was afraid to go see him again. I told the Dr to let me go home. He did. That was early in his PD and I didn’t have the team to help that I have now. But I also fault the hospital for not listening and helping me.

June 20
A MyParkinsonsTeam Member

What were your symptoms of pancreatitis?

June 19

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