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Does Anyone Else Believe That People Sent To Your Home To Help You Should Have Some Knowledge On PD

A MyParkinsonsTeam Member asked a question 💭
Canton, OH
May 17
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A MyParkinsonsTeam Member

Yes, definitely. One reason is that I think most people only think of Parkinson's as being a few tremors and most people just have not heard of or know about most of the many symptoms that can show up in particular the ones that make walking difficult and increase the likelihood of a fall. There are so many symptoms and if someone is coming to the house to help it is important that they are familiar with the symptoms of the person they are helping for safety reasons and for them to actually be of assistance

May 17
A MyParkinsonsTeam Member

When I did homecare years ago for seniors when our daughter was young the agency gave us paid monthly training for about an hour or two on various health issues in seniors. I just worked the hours she was in preschool and the early grades. Topics were things like diabetes, bathing and dressing, medications,changes in the senses, hip replacements, fall prevention, etc. It would be ideal if the agencies that provide the caregivers would have a training class complete with videos to orient the caregivers to the possible symptoms and help needed for Parkinson patients. I will say that prior to my husband having Parkinson's I had only known of four people with Parkinson's and two were acquaintances who were at a distance and one was when I was a teen (a customer who came into the restaurant where I was a wait person). I did have an assignment helping a senior woman whose husband had Parkinson's and he was there but actually most of the time I was there helping her around the house her husband was asleep in his recliner so that didn't exactly give me the big picture in terms of all the symptoms that can appear other than the need for naps.
The homecare training has definitely become more comprehensive and now they even have a certification for the providers. Some of the topics recently offered were disease prevention, protecting against strains and sprains, dementia, heart healthy, and working with challenging behaviors. I suppose that with so many different health issues it would be hard to cover everything but it seems like Parkinson's is so prevalent that it should be one of the trainings. I have not worked as a caregiver for a few years but they still send me the training email. I think it would be good if they had a certification that had classes in Parkinson's and Alzheimer's of the need for helpers. If they had condition specific certifications it might make getting a helper a lot less stressful not only from the standpoint of having someone who was informed but also from the standpoint of not having to train the person yourself. I was a part time caregiver for a young woman with developmental disabilities and epilepsy for almost 30 years. I started taking care of her when she was 5 years old. She did not develop seizures until she was 13 years old. This makes me think that a certification in developmental disabilities, autism, and epilepsy would also be quite helpful.The reason I did not continue being a caregiver was that I had a bad fall that injured both my knees.

May 19
A MyParkinsonsTeam Member

I was so worried that I would have one of my many episodes and scare the lady to death 😳 but she comes back every day and she asks questions about Parkinson

May 18
A MyParkinsonsTeam Member

They should know about the patient or person they are helping care for.

May 18
A MyParkinsonsTeam Member

YES amen or awoman I don't mind ! 😄

May 18

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