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I Am Scheduled To Have Deep Brain Stimulation In A Few Weeks. I’m Just Wondering If Anybody Can Share Their Experience Good And Bad With DBS

A MyParkinsonsTeam Member asked a question 💭
Provo, UT
March 24
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A MyParkinsonsTeam Member

My husband had it about 2 years ago, 10 years after diagnosis. It helped a LOT with rigidity, dyskinesia and general feeling like himself. It cut his meds by half. A friend followed suit and it did NOT help. His symptoms were more balance and gate. My husband is still doing well with minor DBS adjustments and our friend is very much struggling. I think a lot depends on the symptoms you expect to improve. It shouldn't be viewed as a last ditch desperate option as by that time it may be too late to be very helpful.

March 26
A MyParkinsonsTeam Member

I have had Parkinson’s for 14 years and I had DBS 8 years ago. I would do it again and probably 1 or 2 years earlier. I was on so much carbidopa / levodopa before I had it done. . I am now taking 3 a day. I am not taking any other drug for my Parkinson’s. That was the main reason I had the surgery and also I was having dyskinesia . I am in a wheelchair now as I fell in June of 2022 and as a result had a hematoma . My family and dr wanted me to have a wheelchair because of all my falls and I am 77 . I have major freezing. That’s the one symptom that we as Parkies do not have a medicine or surgery to help. Hope this helps. You also have to have confidence in your surgeon. I had one of the best!

March 25
A MyParkinsonsTeam Member

I agree it's kind of scary I'm still evaluating. My doctor's already started the process I have an appointment for a memory test in a couple of months thank goodness it takes a while for this process to get going and I have plenty of time to think about it. I'm not so sure about it. Waiting to read more posts back about it. I hope you have a great day!!

March 25
A MyParkinsonsTeam Member

No l have not. Too scary.

March 24
A MyParkinsonsTeam Member

I haven't had it but I wish you luck

March 24

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