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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm Sure I've Mentioned This Before, But Does Anyone Else Have "down" Times Between Doses Of C/L Or Stalevo?

A MyParkinsonsTeam Member asked a question đź’­
Nashua, NH

I take Stalevo at 5:00 am, 10:00 am, 3:00 pm and then 8:00 pm. Almost without fail, I have withdrawal symptoms feeling weak, lightheaded, and nauseous. Don't dare drive during this, can hardly talk or eat. Sometimes I just lie down for a half hour until it's time for the pill. Unfortunately this triggers my anxiety issues. I try deep breathing, takeing a nap, anything to trick my brain. Does anyone have a similar problem and what are you doing to remedy. My doctor said maybe more C/L devises?

February 3
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A MyParkinsonsTeam Member

Hi Les, 10 min on my exercise bike before going to bed and using a weighted blanket stopped my restless leg issues.

February 3
A MyParkinsonsTeam Member

Yes, experiencing "down" times, or periods when symptoms return between doses of Carbidopa/Levodopa (C/L) or Stalevo, is common among people with Parkinson's disease. This phenomenon is often referred to as "wearing off." Stalevo, which combines Levodopa, Carbidopa, and Entacapone, is designed to help extend the Show Full Answer

Yes, experiencing "down" times, or periods when symptoms return between doses of Carbidopa/Levodopa (C/L) or Stalevo, is common among people with Parkinson's disease. This phenomenon is often referred to as "wearing off." Stalevo, which combines Levodopa, Carbidopa, and Entacapone, is designed to help extend the effectiveness of Levodopa, but some individuals may still experience fluctuations. If this happens, it's important to discuss it with your doctor, as they may adjust your medication regimen to better manage these periods.

August 1
A MyParkinsonsTeam Member

I certainly will, Lukas. I've been documenting daily. I see him next month for evaluation. Thank you for your input.

February 4
A MyParkinsonsTeam Member

Shannon, please be sure to share these details with your doc. The timing or dose or interaction with other meds could be causing these issues and may be improved with some adjustments.

February 3
A MyParkinsonsTeam Member

I take 2 carbadopa levadopa 5 times a day because of what you're talking about and I still get restless legs at night I see my Dr next week and I'll ask him about this and I can get back to you

February 3

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