Good Morning N Happy New Year!how Is Everyone Doing?did Anyone Know What Is The Best Medicine Beside LEVO?
Exercise and grand children (not necessarily at the same time)🙃
Mucuna made me vomit like a chocolate fountain.
I've had trouble tolerating all the agonists like Ropinirole, rotigatine, and especially Opicapone (all three substantially worsened my dystonia (rigidity/cramp) and Opicapone gave me instant insomnia and a urine infection for a bonus).
But, I'm getting potentially positive results with Entacapone (or "Al", as I call it - Al Capone, geddit?). It makes my four daily 200mg intake of slow release levodopa actually have a chance of lasting the required six hours, rather than two hours of warming up/cooling down between my two hour "window" of almost normal function.
Also CBD oil seems to help with anxiety, Magnesium Glycinate for cramps (but also Bovril and the energy drinks to make sure I'm hydrated).
On the last in particular, there's a sambucol fizzy tablet that really helps with my immune system in the coughs and sniffles season - because making sure you keep other health conditions at bay will also help with the Parkinson's.
Lhen,
My doctor told me that he would rather I stayed active and exercise rather than continue that medication. He said it was a question of taking a medication that was going to make me drowsy or keep up my exercising as much as possible. But keep in mind that that was for me. My wife and I always had an active life with sailing, cross country skiing, RVing and more. And I was only on a small dose to begin with. For others, it depends on how much this disease affects them and how effective the medication would be for them.. It's pretty much a juggling act.
@A MyParkinsonsTeam Member
Pramipexole for your cramping.
0.5 mg 3 x daily. Stopped my dyskinesia foot and leg cramping right away. It was a godsend.
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Carbidopa Levodopa