Some days I hurt all over too. I also have arthritis, so I am never sure why I ache. This is a mystery.

Steve, you raise so many good points related to how complicated and complex PD and treatment is. I have not had any success addressed the whole mess at once. Once I made a list of my issues and began addressing each one individually, these interactions became apparent and I found I had more helpful actions then I realized. I don't think clearly when I am surrounded by a 'mess'. But I am able to manage one issue at a time.
I wish I knew a yr ago what I know now- exercise, healthy diet, increased quality sleep and better stress management is the to so many of the symptoms I have and these for life changes have no negative interactions and has really clarified my life in ways I never imagined.
Some meds may be necessary but for me, Now that I am learning the impact of each med and the interaction of the meds, I am able to unravel the mess and improve my days.
Finding the energy and desire to take on this challenge was the hardest thing to do, especially when I was apathic and exhausted but now, it is like letting a rock roll down a hill and improving my days each step of the way.
Maria

Have you talked to your neurologist about your reaction to the meds? Those can be serious problems. I was initially put on Selegiline, in same class as Rasagiline, but MUCH less expensive, and I felt like I was cured. After about 6 months, my symptoms worsened, so he added C/L, and I immediately started having problems with sleepiness, weakness, and low blood pressure after taking the medication. I had to be very careful with the meds, and we tried to use the lowest doses possible. Eventually we tried Rasagiline in the hope it would work better, and because some neurologists believe it slows progression of the PD. Note that the FDA has NEVER approved it for slowing PD. After switching to the Rasagiline, I had a severe hypotensive reaction that put me in the ER in the middle of a cold December night. No more Rasagiline for me! The MAO Inhibitors Type B(MAOI-B), Selegiline & Rasagiline, are well known to interact with C/L and cause the sort of problems I had & you are having. In fact, many of the PD meds do that. I found that if I took the C/L an hour before meals, and my Ropinirole and Entacapone with the meals, I fared better. You can't take the C/L with food, but you can take the Ropinirole and Entacapone with food. That way I don't get hit with everything at once. I have to admit that sometimes in the morning, if I want to sleep a little longer, I will take them all at once and take advantage of the sleepiness side effect. There is a smart phone app called ePocrates that covers drug dosing, side effects, cost, etc. There is a pay-for version for physicians, and also a free but less comprehensive version. You can also go to drugs.com and find lots of info about meds there. But do talk to your neurologist about the side effects you are having. Good luck!

lucas53
from: Marilyn772
(bookaholic)
12/28/23 11:00am

Okay, Here's the story: Left eye is "Detached Retina" / Surgery for foot cancelled AGAIN! Surgery for detached retina is scheduled for 12/29/2023 3:30pm; down time: 1 month.

The foot surgery will wait for several months. Oh, well. God is in control, not me.

Peace and Happy new Year Maria!

I agree Cindy. Awhile back, I forced myself to stop naming or classifying the symptoms and just find ways to relieve them. That is working for me for now.
Sending you hugs and understanding, Maria