Good morning all, perhaps it is the time of day but I am really confused by this thread of communication. If there is anything I can do to clarify or bring research to the situation, please let me know and I'll do it ASAP.
For those who are emotionally and physically tired, I understand. I pray for peace and contentment for you. If you would like some concrete direction,
-please ask if you don't know or understand (me or anyone else)
-please box breath to clear your mind and your emotions- sounds crazy but it can be very helpful
-please don't give up! As Dale said. things work out as they should if you allow yourself to be hopeful and at peace. This is sometimes difficult for me but I believe
God is traveling this road with me and with His help and a little science, all things are possible. Follow your own beliefs but please don't despair.

Teresa, you are amazing. Even with your exhaustion, you remain calm and accepting while ensuring your needs are met and you still hold those close to you while they work their way through this very challenging. My prayer for you and your family is that you continue to find hope and strength and may your family find their way through this time.
Please allow my virtual hug to bring you peace and compassion.
Maria

Thanks Susan for getting to the most important issue addressed in Teresa's message. I agree with all that you said. Anger is a very powerful emotion. In my life, especially now, anger paired with frustration and guilt has paralyzed my family's ability to actually deal with the issues at hand.
Teresa, I think you are amazing and have gained so much from my interactions with you. Thank you so much!
Like me, you probably want everyone around you to be ok but I believe the best way to do that is to try not to worry and work on being as good as you can be. This is not a selfish move and for me, this approach has worked because when I feel better, those around me do to. You the old saying- when mama is not happy, no one is happy- I believe that is true so when I notice my loved one's are struggling. I do a self check and get myself on track. 95% of the time everyone else seem to take a breath and drop their anger, sadness, frustration, etc and find their way back to a less worried and angry state and we all go forward. It's true, this is easier said then done but as Susan said, you have enough to worry about so please be kind to yourself and see how everything settles down. You and your family can individually handle this and will gain strength from each other once each person's worries are dealt with.
God bless you Teresa. Please continue to find joy in each day and try to share with those you love. Thank you for reaching out. I hope you know you will always find care and support here and you are not alone.
Thank you Susan for bringing us back to the most important point.
Maria

I have had an MRI but because I can’t bathe contrast it didn’t show much. I have had a Datscan and because of a medication I’m taking the interaction with the isotope made my film look like fog in a skull. When they discovered the problem no one was willing to stop the med because it did what it should and weaning me off then back on was both dangerous for me physically, but putting me back on would take weeks, leaving me vulnerable to illness. However 4 movement specialists saw me and each have diagnosed me with MSA. I am slipping and I’m now in hospice and my needs are being met.
Thank you for your obvious concern but there is no treatmqqq
ent for MSA, only chances to put out the fires like respiratory failure and heart arrhythmias. I’m okay with what happen n but considering everything happening I okay as the stress of my sibling’ s anger anger rema in the with the doing
Trresaf

Lukas,

any information you can give us I would greatly appriciated.

Diane

Then you have what you need. Enjoy your time with your family. Merry Christmas.