There are times when I just want to escape so many things, but then I snap back to reality and realize I'd be stuck with me and the movie playing inside my head. Unfortunately, there's some real nightmare stuff flopping around in there.
This is at least a fair distraction, you meet people, learn, connect, and socialize with people walking a similar trail, even if by far.
It's no where near perfect, could use some serious perks, upgrades, etc to make it more enjoyable for the members, but at least we have something to share our journey.

So, if some are interested, in this post Covid world of Zoom and such, why couldn’t we have a live on Zoom meeting sometime? Is it prohibited by the site? Anyone, (I’ve done it many times), can schedule and start a Zoom meeting. All we need is a day and time and each other’s email addresses to send the zoom link to. Once you have zoom on your phone or computer, you hit the link at the above mentioned time and bang! We see and talk with each other for up to 40 minutes at a time, free of charge. Just a thought…..

you know i would love to be able to face time with others on here. the socializing is fantastic on this site but it sure would be great to see each other as well. i will not leave this site. as a care giver it sure has helped me a lot.

Something to keep in mind is that these type website, the forums, pages, etc. are actually medical in nature and as such must maintain and protect a specific set of privacy standards and follow HIPA laws.
Which means they're very limited on what they can actually publish, allow, access, grant, etc.
While more perks, better software tweaks, facetime type features, etc. sound great, they would open the doors to hacking, HIPA and personal privacy rights violations that could have serious implications.
We all inadvertently share various protected personal and medical information through our interactions on this portal, many without even realizing what they have done.
I only share information on here because I believe it's a closed secured forum who follows medical guidelines, pre-screen's and continiously monitor's it's community interactions.
The software has algorithms built in to automatically block certain stuff. There is also a community manager assigned, so yes you are being watched.
I wouldn't participate otherwise.
I am who I am, I have what I have, I am verified through the system, I have no hidden agenda, I only care and share here to learn, educate, and communicate with other people who are on the same path in hopes of helping each other along the trail.
I too take breaks from this and other forums.

Ken it popped up from nowhere! Why does it do that ? I'm not leaving. I live here...😁