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Happy Sunday Thrivers! Would You Share Your Safe Ideas, Methods, Techniques, Etc For Taming The Non-motor Symptoms Of PD?

A MyParkinsonsTeam Member asked a question 💭
Burlington, KY

Here are some of the more commonly known non-motor symptoms. It is not exactly a Santa wish list but it does show the many ways we can maintain some control over PD
Please add to the list if I missed any and share your successes and failures with dealing with them so we can learn and be motivated to take our days back
Constipation, urinary incontinence, obsessive behaviors, sleep disturbances, mood disturbances, fatigue, low blood pressure, speech disturbances, drooling, cognitive impairment,… read more

December 10, 2023
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A MyParkinsonsTeam Member

Everything but hallucinations. I've had Parkinsons nearly twenty years. Be patient with yourself. Accept that there are things you just can't do well. Pray for those who care for you. Be thankful for each one.

December 13, 2023
A MyParkinsonsTeam Member

Because my strength in my legs has gone so downhill, I purchased a lift chair so I can get up; it’s fun to play in, too take an afternoon nap. It’s good t pop have.

December 10, 2023
A MyParkinsonsTeam Member

Hi DMarie, I'm so sorry you are living with this. I had the same problems and frustrations and I live alone but honestly, no one wants to hear about my GI issues anyway. But it was such a huge part of my day, I spent a lot of time being anxious and frustrated by the problems you described.
I'm also sorry to say that despite my extreme effort, I had to make permanent dietary changes to get and maintain relief. I was a hard habit to start and even harder to maintain but its been 4 mo now that I have comfort and no worry about GI habits. I have 1 BM, normal consistency every day in late afternoon.

I also sorry to say your doc is right and when I did the following, the issue stopped:
Removed almost all diary, salt, sugar and beef from my diet
I take a pre- and probiotic and fiber capsule everyday
I started following a Mediterranean based diet
I take a stool softener 2x's per day
I drink at least 6 8oz of fluid a day- usually water
I eat fruit and veggies everyday- usually fruit with breakfast and veggies at lunch and dinner

I fought this change for a long time but once I reached the desperate phase, I took it on and made myself feel better and reduced my discomfort and anxiety tremendously, It was a really big commitment but it was and still is one of the best decisions and changes I have ever made but also one of the hardest things I have ever done.
I hope you find your best approach to this really frustrating symptom. Constipation occurs in PD because our intestines do not naturally move food along through the GI tract so we have to change the content of our waste with fiber, water and exercise to make this happen. If I didn't find ways to help my body do a function that no longer works as designed, I would have to deal with the anxiety and pain associated with constipation and also worry about being rushed to the hospital with a GI blockage. Once I faced the truth, the decision to commit to these changes was easy.
I hope you find and embrace your truth, Maria

December 10, 2023
A MyParkinsonsTeam Member

Well, at least I don’t drool.

Runny nose when eating

December 10, 2023
A MyParkinsonsTeam Member

Dale, I know I don't need to tell you what a blessing she is. Please thank her for me. Thank you for sharing and bless you both for being so caring and supportive.
Maria

December 10, 2023

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