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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Wish I Could Tell The Truth About This Illness, But I Think That A Lot Of People Don't Understand.

A MyParkinsonsTeam Member asked a question 💭
Milford, PA
November 10, 2023
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Reactions
A MyParkinsonsTeam Member

I think that Parkinson’s is so difficult to comprehend unless you have it. It manifests itself in so many different ways- and so many times it is silent or non visible-
It is easier to keep my illness to myself than to attempt to explain how my body is controlled by this disease. I cherish those moments and hours when I forget that I am afflicted with Parkinson’s.

December 5, 2023
A MyParkinsonsTeam Member

Unfortunately I have tried to put it in words and with all the varieties of PD it is difficult.

November 11, 2023
A MyParkinsonsTeam Member

There should be no shame regarding PD. Good days and bad ones.

November 11, 2023
A MyParkinsonsTeam Member

It is very difficult. I like to say on a scale of 1 to ten, I am a 5 or something like that.

November 11, 2023

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