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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Noticed That Their Symptoms Actually Got Worse After Being Put On Carb/levodopa

A MyParkinsonsTeam Member asked a question 💭
Gloucester Point, VA
October 14, 2023
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A MyParkinsonsTeam Member

I’m in my 8th year of PD and started carbidopa levodopa about 3 years ago. I was having problems with freezing, shuffling, along with a few other minor issues. All the walking problems went away. I’m starting to have walking issues again. The carbidopa levodopa seems to act inconsistently with on times and off times. I tried changing the amount I take and the time I take. Sometimes I feel that half the pills are fake. I’m still hoping I will find the right formula.

October 14, 2023
A MyParkinsonsTeam Member

Carbadopa has been good for I walk fairly well but I credit rocksteady boxing for that but my tremors have about stopped I can tell when the pills wear off my tremors start aliitle but the restless legs can drive you up a wall so they help me but the dreams are another thing

October 14, 2023
A MyParkinsonsTeam Member

I'm new too and yes my symptoms are worse or it's the side effects of the meds. I don't feel well at all anymore.

October 15, 2023
A MyParkinsonsTeam Member

As my dosage of c/l was increased my symptoms became intolerable to the point of losing consciousness. My small size wasn’t taken into account. Movement Disorder Specialist determined that I cannot tolerate levodopa in any form. I am highly drug sensitive and have had adverse reactions to most Parkinson’s meds.It’s frustrating to say the least.
🌈TheaD

October 15, 2023
A MyParkinsonsTeam Member

Before I started taking carbidopa-levodopa I was freezing up. I could not get out of a chair or walk through a door way. Now I can walk through a door way without freezing up. Maybe I am one of the lucky ones. One thing about this darn PK is we all have different symptoms.

October 14, 2023

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