Have You Read The Article On The Parkinson's Team Website Listing Symptoms That MAY Indicate PD Is Progressing?
I put the list below but please know that many of these symptoms may present themselves or seem to become more frequent but it is not always because PD is worsening. There may be other, more temporary reason for the symptoms. Conversation with your doc about this is a good next step for all of use.
Symptoms That May Mean Parkinson’s Is Progressing:
1. “Off” periods when Parkinson’s medications stop working
2. Tremors and shakiness, which may affect the other side of the body
3. Visual… read more
Good morning Martin and thank you for your kind remarks and your wonderful blessings. I am truly blessed with God's love and knowing all of you,
Maria
It hits us a bit differently, each one. In my case, it's mild on the scale but hard on me nonetheless. Thank you for calling me out on it. It shows intent. I like that.
Hi David. I don't mean to sound like a pollyanna but I felt like I was given a death sentence when I first got this diagnosis. I went through all the phases of grief and sat on the couch for way too long waiting to die but it didn't happen. I got sick of myself and my hateful attitude and fell back on my research and problem solving skills and started reading. It was tough because I easily angered and felt hopeless. I sought mental health to deal with anxiety which led to a secondary diagnosis of depression. After having these issues, I was shocked to find that my PD wasn't that advanced. The symptoms were worsened by the anxiety and depression. Fast forward 9 years and hear I am boring you with a story you may not want to hear but I have to tell you, my future was not signed, sealed and delivered as I used to think, I found the less I did in a day, the less I was able to do. But, the more I did in a day, the more I can do. I also found out the medical community has little to no expertease so my future looked pretty glum if I waited for them to help me. I got tired of that and now I'm doing better than I ever thought 9 yrs into PD and somedays, I feel like I actually contribute in some small ways.
I respect your thinking and shared your belief but I have to tell you I was wrong. I do have a life with PD and enjoy taking on the challenges it presents each day, most of the time. somedays I do wish I had a cat to kick but most days I'm happy to find joy in another day. By the way, I don't have a cat and probably would never kick one but it does sometimes feel good to think about doing it (lol).
Please stay in touch and let me know if I can be here for you.
Maria
2017, wow, you are doing very well. Thanks for your sweet replay Maria. Have a great Wednesday.
Oh Lucky, your questions are wonderful and tell me you are still in the sharp column in terms of memory. I hate when I am given this answer but here we go- the stages are as vague and variable as PD. I stopped paying attention to any staging stuff and just focus on living the best life I caan each day. I leave the rest up to God.
I was diagnosed in 2017 but once I learned about PD, I realized I probably had PD for ys before diagnosis. My MRI has not changed in more than 3 yrs and reducing worry and stress and increasing my attention to the rare things I can change has been the best approach for me.
Maria
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I've Heard Of People Who Were Diagnosed With PD And Years Later Find Out It Wasn't. What Would You Do?