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STAGE IV Parkinson's- HELP -severe Wheezing And Trouble Breathing. What Helps With This?

A MyParkinsonsTeam Member asked a question 💭
FTL

chest x rays are clear; gasping and wheezing. have an albuterol nebulizer that helps some--any body else have this or know what helps? Thanks feeling desperate

June 23, 2023
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A MyParkinsonsTeam Member

I have used Symbacort for years. it works great, in fact if i forget to use it at night before sleep i feel like i am not breathing right. So i get out of bed and spray twice, just need to rince out your mouth with water afterwards to stop possible thrush.

July 6, 2023
A MyParkinsonsTeam Member

Dr put my husband on Trelegy.. it really works great...

June 29, 2023
A MyParkinsonsTeam Member

We found that after 4 years the carbidopa-levodopa meds were causing a lot of difficult symptoms. We scaled back on that and found a balance but it got rid of the long bouts of gasping for air and wheezing…

May 6
A MyParkinsonsTeam Member

I have the same problem and start coughing and choking in the middle of the night chest X-rays don’t show any signs but I’m coughing up gunk from my lungs now day and night but choking at night is the scariest! Good thing is that I’m still looking down at the grass and not up at the grass ! Life goes on and we’ll deal with the cards that we are dealt ! 😳☮️

May 6
A MyParkinsonsTeam Member

My Primary care prescribed Spiriva Respimat 1.25MCG. INH SPR. 2 puffs daily. I also use VENTOLIN. HFA. 90MCG Inhaler for shortness of breath and wheezing. I also use a CPap and keep a canned supply of oxygen nearby when oxygen level gets low .

March 28 (edited)

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