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Is There Some Form Of Imaging That Shows The Progression Of Parkinsonism? This Would Be A Great Benchmark.

A MyParkinsonsTeam Member asked a question 💭
Gahanna, OH

I have only a few symptoms that I had when I was diagnosed with Parkinson’s. I asked my Movement Neurologist if perhaps I was heading towards remission. His response was, there is no remission. The only thing
that you will get is worse. That was so hurtful. I am still suffering from his coldness. This is why I am inquiring about imaging and use it to collect data. Does this make sense?

April 1, 2023
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A MyParkinsonsTeam Member

Amen! We drive to and from home almost 300 miles to see him for my appointments to be knocked down like this?! No, I won’t. I have an appointment with him tomorrow and I will go Bold and tell him that he almost crushed me with His Words and I will seek treatment else where because I know a doctor that is above a DOCTOR who is above all doctors to make a way for me. I will pray for him and I will not give him the satisfaction of being angry.
You know this whole experience was not a mistake because it will build to my testimony of how God made a way for me. There are many great hospitals here and I will find the right Neurologist that is waiting here for me!
I know you and my other teammates will continue to pray for me. Thank you for allowing me to vent. I love you all. 🙏🏾💜

April 3, 2023
A MyParkinsonsTeam Member

I met with the Neurologist on Tuesday. I shared with him about how curt he was with me about my diagnosis. I don’t fare well with direct approach. He thanked me for letting him know and he is going to be mindful of what I shared with him towards all his patients.

April 6, 2023
A MyParkinsonsTeam Member

I had an MRI and DA TScan (or DAT Scan) at the same time to diagnose my Parkinsons disease. Those were the only diagnostic tests I was told about. That was a year ago. Also, about your doctor. I also had a cold fish neurologist who told me on my first visit that his father had Parkinsons. He said when he progressed to a stiff body stage, he "let him die." I had 2 more visits with him. He would not listen to me or my 50 yr old daughter who has worked in the medical field for about 30 years, when we tried to ask questions. On my 3d visit I asked for my records to be marked for referral to a doctor at one of our large hospitals 50 miles away from where I live. It was the best decision I could have made. You have to feel comfortable with your doctor because he/she will become like a lifeline as this disease progresses.

All the best 👍

April 3, 2023
A MyParkinsonsTeam Member

Amen, my sister. He is the Great Healer. Prayers for the right doctor and slow progression until the cure is found.

April 4, 2023
A MyParkinsonsTeam Member

Hi Edna,
I wish I could answer your question but I cannot so I think the best thing you can do is take one day at a time. Do not always look too far ahead. I was just told something that not all things on youtube etc. are always true. So yes it is good to be informed. Sorry, your Neurologist is a cold hearted snake could of should of been more diplomatic I am not saying sugar coat it but at least have some sort of decorum when telling a patient about this disease. It is bad enough knowing you have it. Shame of your Neurologist. Sorry, again just my opinion this is going to get me into a lot of trouble probably but again just my opinion. So cheer up, look up so maybe it won't bet better but your attitude and having I think sometimes a positive attitude may help somewhat. Hope you are having a good day. Take care, BFN! Colleen☺️❤️ sending you a hug!

April 1, 2023

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