Barb, when a person gets up from long sitting, i.e.car ride, sitting in church, sitting in chair at home, he/she should stand for a few minutes to get the blood moving to the extremities. I go to my husband and says something silly to get him to wait before walking.
The neurologist asked my husband to record what time he takes the last Midodrene the day before. He takes his own blood pressure every morning upon arising. We take the record book to the appointment.

My husband has Lewy Body Dementia. For a long time he had extremely low blood pressure. He finally fell over the walker and ambulance took him to a closer hospital. The doctor (new to my husband) said this is unacceptable and we're going to get your BP up. Well he did. He titrated the dosage of Midodrene. He is now on 10 mg three times a day.
The antagonist drug was the one for his prostate. So have the doc look at all meds.

Parkinson's meds reacts with everything you ingest/digest be it food or drugs. Took me awhile to figure out what was going on with my BP. I would literally fall asleep sitting up. Make sure the PARK meds are taken by themselves and wait at least two hours before ingesting anything else in the GUT. By this time every thing will have leveled out including his BP, hopefully.

Great idea. The nurse suggested that today. He had 1 episode this morning after breakfast. Was fine the rest of the day. Nurse said it's trail and error with these meds but to document everything so Dr can look at it. Thanks again