I've been on Ropinerol 3x a day since I was diagnosed in 2019. Just this last month my doctor added Carbidopa-levadopa at bedtime to help with my terrible stiffness in bed. It does help and I'm sleeping much better. It's such a slippery slope with meds, and if I don't immediately go to bed after taking my Carbidopa/levadopa I have terrible nausea. So it's pill, then lights out. I hope you get some answers.

Rytary is very expensive, with Medicare and supplemental coverage only covering 50%. I am pretty happy with the Rytary so far. I take it only from 7:30 am - 7:30 pm and it does address my symptoms pretty well—along with Rasagiline. I’m also starting to look at DBS to reduce/eliminate my need of medications. More to come.

My husband was given Rytary when our movement dr. was at vanderbilt. They were then giving him samples from their pharmacy. We then were given a grant that we applied for for being in a certain income bracket. Its been a great med for my husband, but that is why he continues to take the Rytary.

@A MyParkinsonsTeam Member - since Rytary is time released, it may be effective for a longer period of time. Some people have 'off' periods before it is time to take their next dose of c/l and Rytary smooths out the ups and downs.

To the OP - my husband was prescribed a couple of other drugs along with the c/l (Amantadine for one) and didn't feel like they made a difference. Given the list of possible side-effects, he didn't think it was worth continuing.

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A MyParki...

I have been taking Carbifopa/Levadopa 25-100 since May 2019 and am fortunate that my tremors are gone. I take a pill 3x's/day.

pkd