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I Need To Know Everyone's Very Earliest PD Symptoms, Please.

A MyParkinsonsTeam Member asked a question 💭
Alabama

I Need To Know Everyone's Very Earliest PD Symptoms Please.
Please share with me your remembrances and those of your observing family members of your very earliest symptoms which later led up to you Parkinson's diagnoses. Also, if you are able, please elaborate on progression time frames of various symptoms. Ex: Did the symptoms begin only at a certain time of day at first?
Please share all that you can. Thank you!

March 16, 2022
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A MyParkinsonsTeam Member

Why do you want this information? I hope you are not measuring the deterioration of your or someone close to you, whom you think may have or has Parkinson's. Parkinson's invites itself and no one person with this condition can say their experience is the same as another's. I did not know enough when I started my journey. Having read and having met with lots of PWPs, it seems to me that we may all have similar issues but our coping mechanism, our attitude and relationship with P is different. I was diagnosed 18 years ago. My symptoms started with a frozen shoulder which took two years to correct itself. My left arm wouldn't swing and my left leg could not grasp mules. I got my doctor to refer me to a neurologist and soon after it was confirmed that I had PD, My initial thought was I was going to die. This is not the case. P puts all kinds of obstacles in our way and we have to find a path that will keep us steady and overcome the difficulties. I did two things - I started a support group for people with P of a working age and I did lots of exercise like the gym, yoga, badminton, table tennis, boules, golf and Pickle Ball. It has taken me a long time to get here and I don't compare the difference between now and then. It is a fact that P is here to stay but I am not going to let it dictate my life without a fight. If I got it wrong I apologise but please don't compare your P and someone else's. It is different for each of us but together we can have some quality of life through talking and helping each other fight it.

March 20, 2022
A MyParkinsonsTeam Member

Not sure when it started as i was blaming certain issues on a stroke in 2008 for years, then I had Meniere's Disease in 2014 (single sided deafness) where symptoms of unbalance and dizziness were common. Looking back now with diagnosis of Parkinson's I believe I have had it since 2019 where I just kept blaming Meniere's disease.

All of your questions were mine last Nov. and since joining MY I have seen a tremendous variety of on sets.

I am a constant follower of Davis Phinney Foundation for Parkinson's and learned one of the hardest thing for doctors is diagnosing Parkinson's. My main issues were tremors in right arm & hand and loss of balance.

Good luck in your research,

Bruce

March 17, 2022
A MyParkinsonsTeam Member

(continued) no clue how it was sent before? around 5-7 years after tremors. I try not to do that but as we all know they happen anyway. I have had 3 serious falls since 2017 causing me early retirement. My hallucinations in my peripheral vision began about 2 years ago, which was about a year after my diagnosis. It is like something runs by like you'd see a mouse or cat or at times something bigger. I have not been scared by them. I know it is not real and since we live on a farm, it could have been a mouse so may not always be a hallucination. Ha, Ha! I also lean forward and tilt my head downward. I wear a brace to keep my shoulders back and at times a neck brace for head positioning. My balance is perilous at times. I have to stand a minute before I take off walking to make sure I am not going to fall, right away at least. This year (3 years out) my husband has started to tell me my voice is becoming soft, and I need to speak louder. I do not feel I talk any softer, I asked a friend and she said I do a little but not much. I am working on it. If I speak louder, I feel I am yelling. I think that is my symptom list and timeframe as close as I can get it. I hope it helps.

March 22, 2022
A MyParkinsonsTeam Member

My legs and feet were out of sync. No John Travolta for me right now.

March 21, 2022
A MyParkinsonsTeam Member

For me, it was difficulty with handwriting and dry eyes from a slow blink rate. All of rest of my many symptoms — including a slight tremor, balance, hip and back pain, muscle cramps and spasms, drooling, bladder control, overall slowness, etc. — seem to have appeared all at once over the past several months.

March 19, 2022

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