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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Carbidopa /levodopa Is Causing Me A Ton Of Grief....can You Please Help?!?

A MyParkinsonsTeam Member asked a question 💭
Port Saint Lucie, FL

25/250 carbidopa levodopa (generic) blue colored pill ,It is the only medication i take currently 1 tablet every 2 hours ,12 pills total a day...almost immediately after taking pill... tongue, gums start to burn(extreme) saliva gets thick and stringy lips get fused shut, abdomen gets very tight ,getting a full breath is impossible lower back and neck and hands get tight a urgency to urinate happens within 3 to 5 minutes two red lines appear down the middle of my tongue .it is a real… read more

March 16, 2021
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A MyParkinsonsTeam Member

I would reevaluate my meds. Take it down to basics and see just how much you really need. PD changes all the time so meds might need to be lowered or adjusted. simplify

April 2, 2021
A MyParkinsonsTeam Member

It sounds like you have developed an allergy to the medication. If your doctor won't adjust your meds, you may need a new doctor.

March 16, 2021
A MyParkinsonsTeam Member

try a different movement disorder doctor

March 16, 2021
A MyParkinsonsTeam Member

say a prayer for you

March 16, 2021
A MyParkinsonsTeam Member

Hi Devon ,
It does sound like you may be allergic to something in the meds. I get lines on my tongue if I eat salty things. It also swells.

March 18, 2021

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