Thank you

My husband was diagnosed in 2002. Almost all of his symptoms were not tremors, but severe cramping especially in his legs. Mostly he took carbadopa
at least 4-7 times a day. I don't know how he stood the pain. Beginning Dec 2012, he had his first DBS surgery - he got it foe both sides. There was a total of 4 surgeries at that point in time. I don't know how he did it. Bottom line - he had a much better quality of life for at least 7 years. Unfortunately now, he has increasing dementia and a lot of hallucinations & paranoia. I know he highly recommends it! I think they have it down to 2 surgeries now.

I had DBS on both sides about 9-10 months ago. I do not have tremors or any shaking. My problem was truncal Dystonia- cramping/spasms in the abdominal area. I would ask if your center has had positive results with your particular problem. I am flexible only because I continue to exercise but the procedure has not improved my spasms. Most centers have had success with some problems but not with others types.

My hubby had DBS. Thought it would IMPROVE his life. The drs can offer top meds, great advice and testing. After surgery meds should have decreased, quality of life better. My hubby never had any desires to help himself, would not go to group meetings, read literature, follow in home therapists or even drink water. Even with his 94 year old mothers coaxing. He believed he would never get out of his 50’s. His dad died at 58 of a heart attack.
What I’m trying to say is if you want a better quality of life I would do it only if you are willing to work too. I have been with him 30 years, I’m tired of telling him to take pills or eat. He resents me, he has had this 16 years. I am a wife- but PD has forced me to wear many hats. I bathe, shave and dress him.
Please do this for you, but continue with support or counseling. I want my hubby back, in his eyes I am his boss.

Hubby had rigidity, less tremors. Meds were causing terrible dyskinesias, so he had DBS 2017. He reduced meds by at least 60%. It was a godsend. But time and other medical problems have progressed so his mobility is lessened but still active with rollator. Since his dx in 1997, he has been determined, and exercised religiously.. Always kept active and involved. He is 84 now and slowing down mentally but has been a hero throughout. Requires help now but we are so grateful for the DBS. Had it done by Dr Gordon Baltuch who had done over 1400 DBS surgeries before hubby’s.