Also look for a physical therapist who specializes in movement disorders. A good one may be able to help you with the freezing. Ask your neurologist for a referral.

Just an idea, look at "Giger Therapy" or "Forced Exercise therapy". I've no idea if it would work for your PPFG condition (just a feeling that it might)...

Could it have been "Primary Progressive Freezing Gait"? If so you might want to Google that phrase. It sounds like a version of Parkinson's, but it doesn't respond to the L-DOPA that the majority of Parkinson's patients get.

On the one hand, you may find it harder to get support as it's so rare and not many neurologists will know about it or have experience treating it. On the other, if you CAN find someone who is researching it, you're a bit of a rare bird, so you may benefit from joining a group for study.

Sorry that I couldn't find better information. Post back here if you need some support...I'll try more googling if you're not skilled in that area, but there are also a few people in here with "rare" versions of Parkinsons like MSA and PSP who may be able to guide you better than I can.

Good luck!