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Do Your Legs Lean To One Side When You Sit?

A MyParkinsonsTeam Member asked a question 💭
NC

Everytime my husband sits, his legs lean to one side as if his legs are heavy. He can't explain it and I sure can't. Then he acts like they're heavy or something when he tries to straighten them up. I don't really know what's causing this. Is this an effect of the Parkinson's? So, please let me know if you have this same problem and what do you do for it?

April 28, 2020 (edited)
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A MyParkinsonsTeam Member

I think of it like this and Mind you. I can only speak to. What I've experienced. Like I've never had any freezing issues. So I can't speak to that. But dyskenesia- That only happens when I have too much. Synthetic dopamine in me. And I have uncontrollable movements. It's sort of like I'm manic. I can't stop moving and pacing and. And my whole body is. Alive and it's sort of like the bobblehead. Thing. That is dyskinesia. Now Distonia. Is when I have that. Like I have five socks on my feet. And they hurt and my toes dig into the ground. An I can barely walk. And that usually is accompanied with Brady Kinesia. Which is what I compare to moving like I am 90 years old. I I think like I'm two years old. The distonia and Bradykenisia Happen when I'm off and I don't have enough. Dopamine and it is much worse. But they're both uncomfortable. And when I'm off. I compare it to being like a little doll being shaken over. The head of A. Angry spoiled 5 year old little girl. Who's not getting her way? Every part of my body shakes. Even in the middle of my brain. Recently I have experienced stiffness. When going through withdrawals. Or anxious or stressed out? Which means my feet feel heavy. My hands feel heavy, they don't move. And so I can't move. There are days when I have to use a wheelchair. And then there are days when I can just move freely freely. And even dance. And oftentimes I can't move forward. At all. But I can get around moving backwards or side to side which is the funkiest thing I've ever seen. Shuffling. I used to tease my. Kids in the classroom. I was a teacher for 20 years. That shuffling was only for old people. but i'll tell you what when youCan't move. That's the fastest way to get around. So oftentimes my dog will follow me around the house since I'm shuffling and. Laughing. And moving at a very steady pace. See. Let me think what else is common to Parkinson's? Oh My volume. Speaking, you could usually hear me a mile away. But these days people have to tell me to speak up. Heat. And severe cold. I can't take either one extremes. Heat will wear me out in like 5 seconds. If I have a day where I do a lot. And get a lot done. I usually push myself to the point where the next two days. I'm in bed. In pain and agony. Yes, what you are going through is Parkinson's. And more than likely it's a reaction to your medicine. I wish they made something besides senemet Because I really don't mesh well with it. But my brain is not producing anymore dopamine. So, so I take or Mirapex. Open the receptors. For the synthetic dopamine. And until they have something that equals it. I just have to take it. But too much. Like I said, I have dyskinesia. Too little. The opposite. I hope that helps.

April 30, 2020
A MyParkinsonsTeam Member

Thanks for the feedback. He has improved since getting the stem cell injections. We don’t have a stationary bike at home. Will be glad when the YMCA opens back up so he can bike again😊

April 29, 2020
A MyParkinsonsTeam Member

My legs get heavy and sometimes my balance he[s thrown off

April 28, 2020
A MyParkinsonsTeam Member

I sometimes experience the heaviness feeling in my arms and legs, When the medicine is wearing off It feels like weights are on me but when I take the next dosage the feeling slowly goes away. I have only felt like the heaviness these past 2 years, I'm hoping maybe there is another medication that will help with this.

April 28, 2020
A MyParkinsonsTeam Member

My legs usually feel heavy when I'm walking. I just have the feeling as though they don't want to move. Right now I just power through and keep them moving. I know if I go off balance, it is usually towards the left side which is my dominant side.

April 28, 2020

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