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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Husband Was Diagnosed With Parkinsons Dementia (PHDD) Does Any One Else Have This Diagnosis ?

A MyParkinsonsTeam Member asked a question 💭
Jonestown, PA
September 28, 2019
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A MyParkinsonsTeam Member

Earlier I answered this question however things changed. I saw a MDS neurologist I walked in her office after being diagnosed with Parkinsons disease 22 months Earlier I was told I was at stage 4 with less than a year to live and I had 31 of 40 possible symptoms. She took me off of amantadine which was counteracting my sertraline. She said amantadine was causing at least half of my symptoms and I am at stage 1. Within 2 weeks I went from 31 symptoms to 6 symptoms. I was being over medicated my point is if you are not getting answers get a second opinion or in my case get a 4th opinion

September 1, 2023
A MyParkinsonsTeam Member

I saw a neurologist in 2015 and was told that nothing is wrong with me and that my vitamin D is low. Now my neuro psychiatrist and my neurologist both diagnosed me with Parkinsons dementia and MCI. However I saw a Neurologist/MDS (movement disorder specialist) and 25 of my 31 symptoms were gone within 2 weeks once she took me off amantadine and lowered my carbidopa/Levodopa from 8 pills a day down to 6 pills a day. My suggestion would be make sure you see a neurologist who is also a movement disorder specialist and it gave me my life back. This is the best my Tremors have been in over 2 years. I will be praying for you to find the right doctor and get the answers you need 🙏

Mark

June 26, 2023
A MyParkinsonsTeam Member

Yes 15 months after diagnosed with PD I was diagnosed at stage 3 PD with mild cognitive impairment and Parkinson's dementia. After I eat a meal I have to ask my wife if I ate and what I ate and what day of the week it is. I believe I am now approaching stage 4 very soon and I was diagnosed 1 year 9 months ago

April 18, 2023
A MyParkinsonsTeam Member

You know your mind and body best. You may know before Dr. Your GP doctor can give a Mini-Mental test screening.Nice to get a baseline, over time, scores may change.At first, 29/30 score did not seem bad,to his doctor, but family and I had noticed issues.a couple years prior. Different & more extensive tests can be done. Later, hubby's diagnosis was Mild Cognitive Decline which later became Dementia. Blessings on your journey.

May 1, 2023
A MyParkinsonsTeam Member

I was told their is strong possibility so i visiting Neuro every month going through the full motor and non-motor and now memory test barrage so he can map pace of progress. I do recognise my short term is memory is not as good as it was and my recall is very average these days. it sometimes takes hours to recall answers for simple questions. Also my spelling and grammar is average now so i totally dependent on spell check not just for bad fingers but also memory.

October 12, 2019

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