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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Extreme Paranoia As Side Effect Of Carbidopa?

A MyParkinsonsTeam Member asked a question 💭
Champaign, IL

Newbie here. At a loss of how I can help my family. My father has been on Sinemet for months-- taking the pills makes life "kind of" worth living again, but the negative side effects are beginning to take a toll. He is very paranoid and jealous, accusing his spouse of cheating. It's becoming so difficult for her, who does nothing but love him and take care of him at the expense of her own mental health. She tries to explain to him that this is a side effect of the medication, but he does not… read more

June 11, 2019
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A MyParkinsonsTeam Member

My wife, Jean ,just diagnosed with PD and Dementia was started on Sinemet for a 2 weeks via her neurologist , and at week two she responding better and not sleeping 24/7. Was able to celebrate our 18th wedding anniversary !!

June 16, 2019
A MyParkinsonsTeam Member

Tell your doctor whenever these side efect shows up they can adjust his medicine or put on new medicine

June 11, 2019
A MyParkinsonsTeam Member

Helpinghand 142......I'm a caregiver as well... My husband won't use any meds . He says they make him feel worse cloudy/out of control everyday. His thought is that he only has a few good days a week and he wants to be as clear minded as possible to enjoy them to the fullest. I've noticed his paranoia is getting worse with time. I've been told it's fairly normal with this disease.
I've dealt with codependency most of my life, my advice is to work on you, take care of you. And make sure the Doctors know what's going on. They may take him off the meds or at least have resources to send you to that may be able to help.
I too feel your pain, but hang in there... all will be okay.

June 11, 2019
A MyParkinsonsTeam Member

Your mother needs to talk to his doctor it may be something they can help with another or different medication. You mother needs to schedule time for herself. Caregivers are known for giving all to others and none for self.

June 24, 2019
A MyParkinsonsTeam Member

Hi helpinghand, I am so sorry to hear your family is going through this very ugly experience. I hate to say it but paranoia and delusions are not uncommon for folks with PD. Mine are usually due to a drug reaction but that is not the only causative factor for this situation. I sought professional help for this mental health issue and it worked. My situation caused fear and stress but not the emotional pain your family is dealing with. Please consider talking to the doctor of the person with PD. They may be able to make modifications to meds or offer a referral for other help.
Your family is not alone. I feel your pain and possible feelings of helplessness but don't give up. PD is illusive and annoying but there are a variety of ways to manage the many symptoms associated with it.
We are here to help comfort, support and help you find information.
Maria

September 30, 2023

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