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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do You Have Any Family Members With PD Or Similar Conditions?

A MyParkinsonsTeam Member asked a question 💭
Rocky Mountain west

My father, sister, and brother all have familial essential tremor. My first cousin (my mother's brother's daughter) got tremors as a result of a car accident. She is the one that turned me on to this website.

January 2, 2018
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A MyParkinsonsTeam Member

There is no family history on my fathers or mothers side.
My PD is environmental. The US Marine Corps gave it to me. Google 'Camp Lejeune contaminated water' or go to TFTPTF.com
My new years resolution is to bring awareness about Camp Lejeune.
The chemical toxins have been linked to 40 different diseases.

January 2, 2018 (edited)
A MyParkinsonsTeam Member

My father had it for almost 20 years. We lived in Miami and he was a participant in the human trials of carbo leva. He passed in 96 and now I'm taking the meds he helped develop . He donated his brain to the brain bank. I've been trying to find out if there are any study slides still around so when my time comes they can use mine to look for Markers

January 10, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - you are proof positive that mental toughness and physical sweat has real value in dealing with PD.

August 13, 2019
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - of all the people on this website, you are my hero. I am inspired by your profile story of going from bed ridden to walking around with a rollator, then walking around the house with no walker or rollator, swinging your arms when you walk, and taking care of all your personal care due to PT and exercise and DBS after 15 years of PD. If I look at the Stages of PD, I have all the symptoms of stage 5 Except I am able to take care of my own needs and some of the needs of my family & I am not insensate, drooling in a wheelchair in a nursing home! Thank you for sharing with us here.

August 13, 2019
A MyParkinsonsTeam Member

i don't have the 2 variants 23 tested me for LRRK2 and GBA genes but yet i have PD

August 13, 2019

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