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Opinion On Parkinson's Awareness Ad That Focuses On Dementia And Delusions

A MyParkinsonsTeam Member asked a question 💭
Ballston Spa, NY

There's a new Pharma Ad on TV that focuses on Parkinson's patients with dementia and delusional thinking . Personally, I would rather have seen the focus be on symptoms that are more widespread, yet hidden from the average eye. I think the portrayal of Parkinson's causing hallucinations runs the risk of stigmatizing many of us. I think more widespread "silent" symptoms such as pain, social withdrawal, overall slowness (with movement and thinking) would be more accurate portrayals of what we… read more

November 28, 2017 (edited)
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A MyParkinsonsTeam Member

Glad to hear I'm not the only one feeling stigmatized by this ad. Why would this be the biggest dominant problem with Parkies? Very depressing and scary marketing on their part. Suitable for dementia and Alzheimer patients. Too many of us have enough problems remaining hopeful and this type of advertising just helps them sell their product. Someone on their creative ad campaign did not do their homework . At first I thought the ad would be a psa for Parkinsons because no one ever talks about it . The public should be aware of what our struggles are...then maybe family and friends would be more informed and able to understand our delimma.😇
..

December 11, 2017
A MyParkinsonsTeam Member

I was struck by this commercial when I first saw it. I wondered who their target audience was? Was it the newly diagnosed individual, because they aren't already grappling with enough changes in their life? Is it the PD sufferer who doesn't have hallucinations or delusions like me? I found myself thinking "doesn't that look like fun?" How about the individuals who are delusional? Does this depiction of what they're already experiencing help them?

What was the point in making it so realistic? At one point in the commercial the woman, presumably his wife, is shown with another man. It's not uncommon for delusional PD patients to believe that their significant other has found someone else and may leave them, but what was the point in including that?

Get your message out if you must. I'm sure it has helped patients and their families to know this medication may be an option, but it could have been presented in a different way.

The ad agency did do their homework. The gentleman doesn't blink, has the expressionless look, shuffles his feet, but what PD patient and their family doesn't know that, so skip it. Tell what it is, and what it does, and eliminate the ghostly cat!

I'm concerned enough about my future and do not necessarily need Acadia Pharmaceuticals help.

February 6, 2018
A MyParkinsonsTeam Member

I wrote a letter to them. You can read it here https://www.cdparkinsons.org/post/open-letter-t...

I got a response from Bill Keller, Acadia Pharmaceutical VP of marketing. We set a time to talk by phone in early January to discuss my concerns with their tv ad.
Any points you would like me to emphasize ?
All the best
Jud

December 22, 2017 (edited)
A MyParkinsonsTeam Member

iParseHalluc Thank you for your well thoughtout and written response. You echo the feelings of many of us. Never hesitate to speak up

February 3, 2018
A MyParkinsonsTeam Member

Wow! Thank YOU! I was really afraid I would offend you, absolutely the last thing I wanted to do. When my time comes, as it surely will, I can only hope I have the incredible good fortune to have someone like you to care for me. I am not convinced I will be able THEN to convey my gratitude, so I try to do it NOW: You are the best!

January 7, 2018

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