I have balance problems but no tremor. I take Azilect, which does help with some symptoms (like stiffness/rigidity, I blink more so my eyes aren't so dry). But like @A MyParkinsonsTeam Member I'm very big on Rock Steady Boxing. I go 3x a week and try to exercise vigorously on the other days, too.(This helped balance, handwriting, constipation, and partially reversed numbness in feet). Also physical therapy with a PT who knows PD (she really helped with my confidence, as well as balance.)

Mentioned Users

A MyParki...

@A MyParkinsonsTeam Member Why not check out the exercise place? I find myself more and more drawn to exercise both as a way to slow progression and as a way of coping.

Mentioned Users

A MyParki...

For those with Atypical PD, I was talking with the specialists at the Parkinson's Foundation. Their recommendation was to find a movement disorder specialist rather than a neurologist for treatment. They are more familiar with what is working and what is not. I have Shy Drager which is a form of Atypical PD. I like to call it my "Shy Dragon" because one day it will have one symptom and the next day it will be different. Right now am going through a spell of not sleeping and severe restless legs at night. I live in the far northeast corner of Illinois. They have the boxing down in Chicago, but that is 90 miles away. They just are opening a 24-7 exercise place right up here by us. Am seriously thinking of trying that out.

My wife has Atypical Parkinson's. We have been to Stanford and UCSF for medical guidance. The Levodopa/Carbidopa did nothing for my wife. We are sad to say that nothing has come along that she can take that alters the progression of this treacherous disease. I wish I could suggest something, but...

Absolutely yes to getting a movement disorder Specialist. Finding the right one though can be difficult but all their training is with Parkinson’s and movement disorders so that’s the way to go. Plus you can’t have DBS surgery without a movement disorder specialist signing off anyway!!