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Clinicaltrials.gov Trials Are NOT Government Acreened Or Approved

A MyParkinsonsTeam Member asked a question ๐Ÿ’ญ
Old Lyme, CT

Just thought you'd be interested. I did not know this: The clinical trials on clinicaltrials.gov are NOT checked by the US government. This includes a whole bunch of bogus "stem cell trials" that aren't trials at all. If you have to shell out any money, it's not a real clinical trial. Worth a read. https://consumerist.com/2017/07/20/reminder-stu...

July 20, 2017
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A MyParkinsonsTeam Member

If you want to participate in legitimate PD trials go to the Fox Trial Finder https://foxtrialfinder.michaeljfox.org/. I'm participating in the PPMI study, which is funded by MJ Fox foundation.

July 21, 2017
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Branson
Think you will benefit from the books an Aware Care Kit.Have you can get from the Parkinson's Foundation their phone number is (Phone number can only be seen by the question and answer creators). The Aware Care Kit.Have has forms that can be taken to the hospital,a bracelet that shows you have PD..Lots of other stuff you will find of interest.You will find people who care about you guys here at MPT.We are all walking the same path roads in this disease. Some of us are farther than others some have freezes, speech probems,shuffling, falls, tremors I have the last two tho my falls are coming farther apart now for some reason.I may be coming more careful HAHAHA.What ever the reason I am grateful to God.If your hubby is put on new meds an has any type of side effects call your Neurologist immediately. Also ask the Neurologist about Physical therapy an a Physical therapist to teach him how to get off the floor by himself as to where you don't have to pull on him.You could possibly hurt either one of you by trying to get him up.You can always call for help if you think he has hurt himself.You asked about P.D.trials here
again you could ask the Parkinson's Foundation, Michael J. Fox Foundation have never heard of a trial where you had to pay.Have one person on my team is doing them in Colorado.Has anyone told you his sleep patterns may change? Well, think this enough for you to think on ,young lady.Remember this is a lifetime of communication that is different from other couples an a lifetime of commitment. OH yes there is the Mayo Clinic almost forgot them understand they have good info an maybe trials.Take Care God Bless Hugs ๐Ÿ˜„๐Ÿ˜„๐Ÿ˜„๐Ÿ˜„

July 23, 2017
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member. Thankyou for this info!! My hubby is in beginning diagnosis. This is all new to us. I am sooo grateful for any and all info we can get ! Ian adding you to my team if that is ok. You seem to be quite helpful. I hope to be as helpful to others as I gain my knowledge! Thankyou!!

July 21, 2017
A MyParkinsonsTeam Member

Thankyou! I did not know this!! So very glad you told me! We are new to PD. So the more info and help the better! Thankyou!

July 20, 2017

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