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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Stage Where You In When You Started Have Balance Issues?

A MyParkinsonsTeam Member asked a question 💭
Weymouth, MA

Can anyone tell me approx what stage they where in when they started falling?

June 1, 2017
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A MyParkinsonsTeam Member

I am also BI-Polar so in 2012 my meds were all messed up to the point I was unable to function on my own, I was living in Nashville and finally found a good Parkinson's Movement Disorder neurologist at Vanderbilt and he and my Psychiatrist started all over and got me to a good baseline on my meds but I had to go thru 8 months of rehab to learn how to eat, hold utensils, drive, drink from cups, walk etc.. and at the end of 2013 I was able to get my drivers license back and went back to work. I got much better for a while and then we moved to Denver in late 2016 and I started to decline again, more cognitive issues and tremors were pretty bad. My neurologist said I was a good candidate for DBS surgery and I had that in July 2018 and other than a continued slow cognitive decline which forced me out of work, my balance and tremors are just about gone. I attribute my improved movement and balance are a result of Physical therapy 2 times a week for past 2 years, pulmonary rehab 2 times a week for past year and me just getting out more.

May 21, 2020
A MyParkinsonsTeam Member

My Dr. tells me that I'm in stage four of PD. I'm in my 25th year . I have fallen several times - broken my arm, my ribs, and banged up my knees more times than I care to count. My balance is very scary. I have a power chair for home use and rely on a wheel chair for outings. I need help to accomplish every day tasks, and I have the most loving and supportive husband one could ask for. Not once has he ever complained or been annoyed with me when I couldn't do something or made a mess. I truly believe that having good support is what makes it bearable. I'm thanking God every day for how he has blessed me. He holds my future in His hands. I have nothing to fear.

February 25, 2019
A MyParkinsonsTeam Member

I'm in stage 2 I believe, but I'm falling about 2 times a week or so, but I'm having more trouble with my memory, concentration and staying focused.

February 11, 2020
A MyParkinsonsTeam Member

I agree it you have a good support network of family and friends you are very lucky I have a large family who live nearby and they are always there for me, helps me to stay positive I believe you can slow down the progress if you keep active and have a positive attitude

March 3, 2019
A MyParkinsonsTeam Member

I have balance issues and I'm still stage one

November 28, 2021

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