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Deep Brain Stimulation (DBS)

A MyParkinsonsTeam Member asked a question đź’­
Mankato, MN

DBS done Jan 11, 2017
2Weeks later, battery/patient programmer surgery
1week latter, programming took place. Tremors almost gone
During this session, eliminated 2 extended tabs 25/100 Carbs dopa, one at 10am and one at 10PM. I became dizzy, lost balance and ran into wall.

Second programming session took place April 16. My balance seems tqo an issue, I couldn't do the balance test, where one is standing and from behind, one is pulled back from behind and you catch yourself by taking a step… read more

May 2, 2017
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A MyParkinsonsTeam Member

It is a frightening surgery, but I prayed about it and felt I must take the risk and improve my quality of life. I want everything to happen yesterday, and this is a very slow process...so I ask God for more patience. Sometimes, I think He answers me in another language. Lol. I think it will help me, but it takes time. :(

May 5, 2017
A MyParkinsonsTeam Member

I don't have any experience with DBS but taking mirapex at bedtime did wonders for my restless legs.

May 2, 2017
A MyParkinsonsTeam Member

I feel your pain....you are a very strong person.... I identify with a lot of your symptoms, my leg wakes me up too, my hip hurts like nobody's businesses! My balance is shot even though i have been taking Ampyra for 2 years, because I also have MS, my neck is hurting so much and I am going to stop there because, I don't want to bore you...lol Taking in consideration DBS can help I am so afraid of it.

May 5, 2017
A MyParkinsonsTeam Member

Thanks Genoa, I will try the Apple and banana. What are Big Steps?:

May 4, 2017
A MyParkinsonsTeam Member

Eat 1 banana or 1 apple before sleeping.
for me it is good because the brain produces melatonin
Put big steps then it will be better each day

May 4, 2017

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