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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Has Your Taste And Smell Been On Parkinson.

A MyParkinsonsTeam Member asked a question 💭
Reed City, MI
April 30, 2017
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A MyParkinsonsTeam Member

when I was diagnosed about 10 years ago I enrolled in a study to determine the link between loss of smell and onset of Parkinson's . First I had an MRI done than a smell test the researcher had a pile of 40 or so scratch & sniff cards , she would scratch one and I would have to smell it and tell her what it smelled like. I would have a list of 4 items to choose from ,like 1 Motor oil 2 leather 3 apple pie 4 oranges. I would smell it and I couldn't tell exactly what it was but it didn't smell like oil so I would guess Apple Pie thinking I had a 50/50 chance it was either that or oranges . using this guess method I got 17 out of 40 right . the professor who ran the study figured I had about 20% of my sense of smell left . He was experimenting with this because he figured a high percentage of Parkinson's patients had experienced some loss of smell 2 to 4 years before symptoms start. If true it could be an early diagnoses tool ...

May 15, 2017
A MyParkinsonsTeam Member

I noticed my loss of smell about 20 years ago when I saw burning toast. (This was about 6 years before being diagnosed with PD. ) Since then some days my sense of smell is normal but mostly I have none. Some days I have smells stick in my nose but unable to recognise them. Other days I smell things that aren’t there. Luckily I haven’t lost my sense of taste.

February 22, 2020
A MyParkinsonsTeam Member

Another Parkinson's symptom? Nose hallucinations. Talk to your doctor. I don't have them (yet)but I've heard of olfactory hallucinations.

Nancy (Copperhead)

May 2, 2017
A MyParkinsonsTeam Member

I lost both years ago. But I have a dog with a gas problem so I guess it is not too bad to no sense of smell

April 30, 2017
A MyParkinsonsTeam Member

Parkinson’s deminished both senses for a few items such as banana, gas, cinnamon, pickles, licorice and a few others. I smell and taste them, just not as well as before.
Sometimes, I'll smell things that just aren't there.
The worse loss of senses has been from three bouts with Covid-19 over two years. It has basically destroyed my sense of taste and smell across the board.

December 16, 2023

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