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Hello, Are There Any Carers On This Site ?

A MyParkinsonsTeam Member asked a question 💭
Torquay, UK

I wondered whether I should be in this group or not?My dad has Parkinsons and I care for him. Are there any other carers here . Hope you are all well x

March 15, 2017
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A MyParkinsonsTeam Member

I truly believe that Sal's Parkinson's got worse after his 10 months of in activity, Because he could not exercise at all during that time. Before May of 2016 He was going to the gym 3 times a week and had a trainer. Very few people knew he had Parkinson's. Locally we have (mid East Coast) a very large active Parkinson's group and have many speakers. One was a nurse from Johns Hopkins Hospital and at the end she said. Exercise,Exercise,Exercise and when you are done exercise some more. That Never left our Minds.and that is what we did. Anyone who has the Beginning stages of Parkinson's should exercise at least 3 times a week intensely.

I have the realization that I will never get Sal back to the stage he was in, but He is now back exercising almost every day. Two times a week with the Parkinson's Group for an hour and three times a week at his old gym for about 15 to 20 min.. Hopefully that will increase. It takes up a lot of my time but it is worth it.

Yes Nancy you should be in this group. Please get your father to exercise. You will learn what some of the changes your father is going to make. Locally We have a support group for the Parkinson patients and another for the caregivers. See if you can find one in your area. It is an illness that he lives with 24 hours a day and never ends.

March 24, 2017
A MyParkinsonsTeam Member

@LynneWilliamWasPenney...this is a group of very encouraging folks and I have not only been encouraged by their strength to face each day, but also by their caring attitudes and stamina. I think they can be a great support and we, the caregivers, have a lot to learn from them. Stick with us for a while.

March 17, 2017
A MyParkinsonsTeam Member

Thanku, my dad just can't get over losing my mum. I am sure he got worse since he became heartbroken. Thanks for your support x

March 16, 2017
A MyParkinsonsTeam Member

There are, i am, good info

March 31, 2017
A MyParkinsonsTeam Member

@CatherineJMeoreFitchera: Oh my, you have your hands full and I'm not sure I will be able to manage 100% care for my spouse when/if that all happens. We are so blessed with what I call "mild PD" at this point in time. I clearly understand it is a progressive disease with little help even from lots of diff type of meds, but I have learned it is not a nice disease. My prayers are with each of you who suffer so, as well as those loved ones who care for you. "Lord, have mercy on those who suffer."

March 23, 2017

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