Oh so sorry for what you are going through. Sounds dreadful! My wife started taking CDB oil and it's worked wonders. Helps with tremors for sure! I witness the progress. We are in California and had to get a medical marijuana license. Went to a local dispensory and got CBD oil. She uses a few drops at a time. 4-5 times daily. Exercises and swims most every day also. Hasn't seemed to curtail those activities. Mood is better too! I, as an observer/caretaker/loving husband am so happy she's taking the CDB oils.... My vote is YES!!

Sometimes the pain is unbearable, but I know relief is coming. I try to be patient. I usually sprawl out in the middle of my bed, and fall asleep til the meds kick in. It's a different story when I am at work! I just try to stay focused and relax until I "click on". I am a teacher, so I basically sit at my desk and have students come to me. I teach adults. You may want to look into "Apokyn" with your doctors. It is an injection that goes right into the bloodstream. It works within 5-10 minutes for emergencies. It has been a life saver for those emergencies when I can't walk. It is not absorbed into the intestines, so it always works for me. The needle is very benign. I have no problem giving it to myself. I don't use it very often, but it is a comfort knowing that it us available.

Trying, have you considered DBS, if you are in so much pain? Bean

i feel like that a lot to. i have found it helps me get through the immediate crisis if i can find any kind of positive in my life and dwell on that. sometimes it helps, sometimes not.Hang in there I know how hard it is for me. I also know it does get better. Just hang to the person closest to you and let them help you through. My family tells me it feels so much better when it stops hurting. and I answer yes but when does it stop hurting.
Some tell me its when God wills it. that sounds to me like God willed the pain on me and i can't believe that. Perhaps there is a reason for it I don't know..But I know there is still hope out there and good times and good people., love and laughter.don't miss out on that part. sending prayers

I find that once you accept the diagnosis of this dreaded disease, handle the off time, by lyning down, reading mindfulness, than fighting it. It is what it is. Easier said than done, but going through each part of every day, is the best. \THis is our new normal.. It is shhhhhh, but what can we do.....all the best