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Parkinson's And Breast Cancer

A MyParkinsonsTeam Member asked a question 💭
Tyler, TX

I have both Parkinson's and Breast Cancer, and will be having a mastectomy. Doctors are not understanding how bad my PD symptoms are when my meds aren't working, which has been happening a lot for a long while. They have not seen me in that state. I am wondering if there is anyone else on here with PD who is facing breast cancer, or anyone who has been through it. And if there is, did you have a plan set in place for surgery,,,, mainly, after surgery?

March 21, 2016
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A MyParkinsonsTeam Member

Hi, I had breast cancer last year. I underwent a lumpectomy with a lymph node dissection, followed by chemo, radiation and herceptin for a year. My PD was fairly under control at the time. My surgeon kept me in hospital 5 days because of PD. I brought a week’s worth of medication with me to hospital even though I was told they would provide them. This turned out to be a good decision as it took a long time for the hospital pharmacy to get requisition and supply my meds. It allowed me to follow my schedule and avoid repercussions.
My cancerologist said, that in her experience, PD patients seem to tolerate chemo better than non-PD patients. That proved to be the case for me.
I found radiation the hardest. Travelling back and forth to the hospital everyday depleted my energy level. Although the treatment was only approx. 5 minutes long, it sometimes took up to 3 hours for the treatment to be concluded. Other patients treatment Impacted the timing of my treatment, awkward positioning, alignment and realignment of the body to hit the marks, made it a very tiring process.
What you are undergoing is much more serious and I wish you all the best. If you have any questions, don’t hesitate to ask.

April 1, 2016
A MyParkinsonsTeam Member

I have talked with several women who had serious surgeries. They wisely gave all their MDs a detailed list of their meds, when they needed to be given, etc. Also if necessary have your neurologist talk with surgeon.
Unfortunately all reported that their PD seemed worse after the surgery but gradually improved.

March 27, 2016
A MyParkinsonsTeam Member

You are all so brave.

March 23, 2016
A MyParkinsonsTeam Member

Hi there. I had a double mastectomy 8 years ago. Although I was having difficulties, I had not been diagnosed with PD yet. My situation was very different in that I was recovering from a stroke at the time of my cancer. My neurologist did not OK chemo so I went a more natural route...building up my immune system through daily juicing. Is your neurologist aware of your diagnosis?...don't assume that they know. Their opinion will be very important for which direction of treatment you should go in. Please know that I'm here for you if you have any questions regarding the cancer. Hope you don't have to wait too long for your surgery. Bring a small pillow for the ride home...you'll need it. God bless

March 22, 2016
A MyParkinsonsTeam Member

Thinking of you God bless x

March 22, 2016

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