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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Nutrition

A MyParkinsonsTeam Member asked a question đź’­
El Paso, TX

Has anyone changed their diet when diagnosed with PD? Have your symptoms changed in any way?
In other words, is there a correlation of what we eat with Parkinson's?

January 15, 2016
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A MyParkinsonsTeam Member

Lots of veggies and fruit, decaf tea and coffee. Watch the protein (meats , beans, etc.) no more than 32 grams of protein daily. Also take medication at one hour before your meal to give the medication time to reach your brain. Also , sugar can affect the meds too. I read everything I could on Parkinson. It has been 18 year now I am still moving freely.

January 19, 2018
A MyParkinsonsTeam Member

Limiting protein to 6 grams of protein per meal is NOT recommended for all patients with Parkinsons. Limiting protein an hour before and two hours after (for many just 30 minutes before and an hour is adequate) taking your levodopa is recommended. Malnutrition is very common in people with Parkinsons and protein intakes need to be specifically tailored to individual needs and medication schedules. A visit to a Registered Dietitian Nutritionist (RDN) with experience in Parkinsons can be a real plus. Ask your MDS for a referral. Plant based diets are probably good for everyone! Many people (PD or not) eat way more protein than they need. For a do-it-yourself estimate, visit ChooseMyPlate.gov and set up a personalized diet plan. It doesn't account for PD but sets estimated nutrient levels on gender, activity, and whether or not you want to lose weight. Use the "Supertracker" and you can create detailed reports on what you ate to take to your doctor or dietitian or just use to figure things out.

February 5, 2016
A MyParkinsonsTeam Member

I have started to leave an hour before I eat where possible as it helps me digest my food better. I know that some people find having protein too close to a dose affects their absorption of the medicine and therefore has decreased benefit for the patient. I find I have to avoid caffeine as it overstimulates me and excaberates my tremor.

January 9, 2018
A MyParkinsonsTeam Member

It does that to me too. I like everyone has a problem with protein and the meds. It blocks the meds from reaching the brain and acting to make dopamine. Sugar can do he same thing.

April 16, 2016
A MyParkinsonsTeam Member

I have heard drinking coffee is very helpful so my husband has started drinking it twice a day and it does seem to help him relax. Pretty odd considering it's caffeine, but there has been some research that indicates coffee affects Parkinson's in positive ways.

February 10, 2016

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