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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Parkinson’s Symptom Surprised You The Most?

By A MyParkinsonsTeam Member 389 answers
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When I Go For A Walk I Tend To Stagger Occasionally Does Anyone Else

By A MyParkinsonsTeam Member 202 answers
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What's Your Mantra ?

By A MyParkinsonsTeam Member 96 answers
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What Lessons From Your Parkinson's Experience Are You Applying In 2024?

By A MyParkinsonsTeam Member 155 answers
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12525 questions

Can One Be Misdiagnosed With Parkinson Vs Having Essential Tremors?

A MyParkinsonsTeam Member asked a question 💭
Knightstown, IN

My doctor just added Primidone to help my tremors. The tremors are almost gone. Primidone is more for essential tremors, I think. If so could I've been misdiagnosed and not have Parkinson?

A MyParkinsonsTeam Member

Essential Tremor is a tremor that occurs when you are using the affected body part. Parkinson’s is a testing tremor. It is possible to have both.

August 29, 2024

Which Parkinson’s Symptom Surprised You The Most?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

Betty, you hit the nail on the head. Very well said👏😊

2 days ago (edited)

Has Anyone Else Benefited By Vitamin B One Daily Like I Have?

A MyParkinsonsTeam Member asked a question 💭
Lebanon, PA

I started taking 1000 mg of vitamin B one daily over three months ago and about three months and I started to notice a dramatic change. I stopped falling improved to the point that I know the longer need a cane or the occasional wheelchair distances. My mind is clearer and there are days when I feel I don’t even have Parkinson’s although I’ve had it for 18 years and have been through hell. It has not done anything for the non-motor aspects but I’ll take anything I can get into me. I’ve… read more

A MyParkinsonsTeam Member

I was diagnosed 2012
My B1 / thiamine hcl dose is four grams daily.

In combination with Sinemet, I am beating Parkinson’s, B1 like Sinemet is not a cure but they work together keeping me out of… read more

August 24, 2024

I Can't Believe The Response And Genuine Words From Those Affected

A MyParkinsonsTeam Member asked a question 💭
Kansas City, KS

I Like During The Day Don't Worry Very Well In The Middle Then You Walk It All

A MyParkinsonsTeam Member asked a question 💭
Crofton, MD
A MyParkinsonsTeam Member

What do you mean? You walk pretty well in the morning, then it gets worse as the day goes on?

August 18, 2024

It's It Just Me. But Lately I Seem To Choke Alot..

A MyParkinsonsTeam Member asked a question 💭
Silt, CO
A MyParkinsonsTeam Member

Awesome

August 23, 2024

Does Anyone Have Osteoporosis And Parkinson’s? Looking For A Nutritionist And Personal Trainer In Pittsburgh. Appreciate Your Response!

A MyParkinsonsTeam Member asked a question 💭
Pittsburgh, PA
A MyParkinsonsTeam Member

Thank you! I hope you find a solution

August 19, 2024

Just Started Sinemet After A Diagnoses 4 Years Ago. Not Seeing Any Side Effects, But Also Not Seeing Any Significant Improvements. Thoughts?

A MyParkinsonsTeam Member asked a question 💭
Kimberton, PA

Dosage is currently 25/100mg 1 1/2 tablets 3x/day

A MyParkinsonsTeam Member

Thanks for the response Cyndy! Keeping you in my prayers...
take care...
Patrick

September 3, 2024

Do Some People Get A Moderate PD, As Opposed To Severe? I'm Not Referring To States Of PD Progression. Is There Minor PD?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

Parkinson's disease (PD) varies greatly among individuals. While the disease generally worsens over time, the severity and progression can differ. Some people may experience milder symptoms and slower… read more

August 17, 2024

What Is A Good Day?

A MyParkinsonsTeam Member asked a question 💭
Ferndale, CA

awaken so ill every day guaranteed, homebound. WHAT is a good day like for you?

A MyParkinsonsTeam Member

A good day is
I slept 9 hours
I feel like eating
I'm talkin and smiling
I'm outside
I'm in a store....AND I have my Zinger mobility chair so I can cruise around with my peeps ! Or burn rubber in… read more

August 19, 2024
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