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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Advice Are You Grateful To Share With Others About Parkinson’s?

By A MyParkinsonsTeam Member 100 answers
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What's A Common Misconception About Parkinson’s?

By A MyParkinsonsTeam Member 179 answers
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Could You Share Any Dietary Changes And Tips That Have Helped With Parkinson’s?

By A MyParkinsonsTeam Member 167 answers
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Who Else Sometimes Question Their Sanity?

By A MyParkinsonsTeam Member 81 answers
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12522 questions

Anyone Tried Botox To Alleviate Rigidity?

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

Cramp and tension in back of thighs is currently my worst symptom. Any experience (good or bad) of Botox, as a treatment would be appreciated. Thanks!

A MyParkinsonsTeam Member

Haven't tried Botox yet but taking magnesium every day for 2 years has helped a great deal ,also use muscle relaxers 3 times a day ,think I've had PD a lot longer than 4 years,best wishes to all!!!!

September 5, 2024

How Do I Change Where I Live?

A MyParkinsonsTeam Member asked a question 💭
Braintree, MA
A MyParkinsonsTeam Member

To change your location on MyHealthTeam, follow these steps:

1. Select the menu icon (three lines on the top left of the page)
2. Choose 'Settings' and then 'Account settings' from the menu that… read more

August 31, 2024

I Have A Reaction To Muscle Relaxers. My Muscles Don’t Relax, They Get Tighter. Anyone Else Have That Happen?

A MyParkinsonsTeam Member asked a question 💭
Elkins, WV

I am never that tight any other time. I have a mild case of Parkinson’s
Anytime I take a relaxer like over the counter, I always get cramps
I recently had an epidural shot in my L4 L5. He also gave me trigger point injections. After three days I could not move I was so tight.
About a week and then I can move. I didn’t know at the time why I reacted that way until I went down to see my neurologist and he prescribed me a muscle relaxer (tizandine) 4mg.
I had the same reaction, tight… read more

A MyParkinsonsTeam Member

Some people with Parkinson's disease experience muscle cramping or tightening, known as dystonia, which can cause soreness and pain. This might be similar to what you're experiencing with muscle… read more

August 31, 2024

Anyone Out There Going To The Victory Summit In Green Bay Wisconsin On Oct. 11, 2024?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I'm sorry to say Wisconsin is too far away to drive in a day. So, no.

September 1, 2024

Taking Levodopa How Long Does It Take To Work If It Helps Coordination Does That Mean You Have Low Dopamine

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Yes it works for me

August 31, 2024

What Vitamin Increases Dopamine?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I am taking D3 1000 everyday, B12 1000 everyday along with a multivitamin

August 31, 2024

I Play Softball. Ever Since I Got PD My Ability To Throw Or Hit The Ball Have Been Weak At Best. Any Exercises Out There To Help Me?

A MyParkinsonsTeam Member asked a question 💭
Chatsworth, CA
A MyParkinsonsTeam Member

Yes, there are exercises that can help improve your agility and strength, which may benefit your softball performance. Here are some suggestions based on the knowledge base:

- PD Warrior Exercises… read more

August 29, 2024

Terrified And Lost!

A MyParkinsonsTeam Member asked a question 💭
Ferndale, CA

i know nothing about this illness except what im going through and so scared! i need help, so much but brain doesnt work and forgets all im told and read. dont understand anything! i really wanna die.

A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member it’s very late & I am just thinking of you & praying for you. I wanted to check in with you.. Do you realize how many of us love you & care about you. You are important.to… read more

September 2, 2024

Has Anyone Had A PEG Tube Installed In The Stomach For Feeding?

A MyParkinsonsTeam Member asked a question 💭
Alamosa, CO

My mom has Parkinson’s and has reached the point where swallowing is causing too much choking and risk. The team of doctors she sees has suggested the PEG tube with stomach insertion. I’m looking for information for someone who has had it done. I’ve done a major amount of google searches but would like a personal view.

A MyParkinsonsTeam Member

Big DNR in place here.

September 6, 2024

Who Else Was Born With Two Club Feet And A Right Frontal Lobe Arachnoid Brain Cyst

A MyParkinsonsTeam Member asked a question 💭
Auburn Massachusetts 01501
A MyParkinsonsTeam Member

Hugs

September 5, 2024
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