Top 10 search results for "how do you deal with family members that just dont understand why youre not who you used to be and cant do the things you used to do" in Q&A. To see all results and access other features, sign up for free.

Has anyone found neck or back supports helpful

Because I fall a lot, cannot stand for long periods of time, shakes a lot, trouble walking, etc. I just want them to know I am not seeking or want sympathy or feeling sorry for myself. I cannot cook a lot like I used too. I almost fell into the oven, so I only cook when someone is home. I am alone from 7am-7pm. I have no friends that visit, or call. I just want ppl to understand I cannot walk, run, and clean like I used to do. I try but I also have congestive heart failure. I just want… read more

This disease is the worst to comprehend as a patient and as a caregiver. I stay isolated and alone because people are afraid of me. When I tremor and my arms are flailing out of control, they think I am being aggressive. When my facial expression is frozen and I can't turn my head and have trouble with speech, people think I am ignoring them. People are constantly telling me not to be nervous to just relax. Really, I could scream every time I am told this. There is no way to communicate my… read more

I am so tired of people who say take this take that or that their brother had The shakes, this helped him
I'm sick to death of it. I'm tired of people saying well it can't be that bad I'm tired of people saying well you don't need to keep going to all these different doctors. I'm fed up with people trying to give me medical advice. I have surrounded myself with people that I trust my MDS my physical therapist and my psychiatrist. If I trust someone that can help me I will do whatever they say… read more

When I die I won't be posting any longer but my wife will post a brief message saying something like he's gone ! However .........

If you make weekly visits to an elderly friend living alone with failing health you're likely to notice when they die but what about on line ? You may have conversed for years knowing only their name on a forum. No address to write, No email, No phone, some knowledge of family and friends but no way of contacting any of them and one day they're gone. Silence. No… read more

How do you explain Parkinson's to your friends and family? Do you think they understand?

Are you honest with your family and friends about how you really feel? Are you honest about your physical or your emotional difficulties?

Yes, or no? And why

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