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Exercise Vs Symptoms

A MyParkinsonsTeam Member asked a question 💭
Reston, VA

Any activity I do usually gets shut down by dizziness and nausea within 30 minutes. A rock, a hard place. Thoughts to get beyond this?

December 7, 2023
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A MyParkinsonsTeam Member

I'm constantly having to remind myself that I'm in my 70's and while Parkinson's isn't my only health issue, it seems to be the easiest to blame.
My noninvasive cardiologist got a serious wake up call with my blockages causing the dizziness and orthostatic hypotension.
He kept saying it was a common symptom and pointing a finger at the Parkinson's.
They ran a CT angiogram and it showed two 70% blockages and because I was having chest pain, etc. They decided to go ahead and do the catherization and run the cath up into my heart, pump the contrast in and see what they found.
It was a shock, the two the ct angiogram showed was only about twenty percent. Tge invasive cardiologist doing the cath found three that was over 90% each and he ballooned and stented them.
Don't trust the ct angiogram it can really miss major issues and magnify smaller issues.
They wasn't going to check further, but I insisted on the regular catherization procedure and they found major blockages that didn't show at all on the catscan.
I have not been able to make myself dizzy or experienced the orthostatic hypotension since they opened up those blocked arteries.
You gotta be your own health advocate. Like Maria said, it takes effort on your part, track symptoms, keep a journal, make your doctor's aware, make them examine, consider, explain, and eliminate other possibilities. They have many patients and some things will be outside their areas of expertise, make them seek the proper care by referring you to another specialist if they can't provide adequate diagnosis, etc...
I have fifteen specialist physicians in my care team and I keep a journal and discuss every issue with each one at all my visits.

December 9, 2023
A MyParkinsonsTeam Member

Thank you Kenneth for sharing that experience. PD is awful and has many annoying symptoms but it is also subject to becoming an umbrella where anything that presents itself gets thrown under that umbrella and can go untreated or mistreated because we have the source wrong.
I often ask that people start and keep a journal. Again I know this is a tool no one enjoys or wants to use it daily because it feels like a burden. It may feel like another punishment from PD. But this tool is a great way to pick up on small changes in diet, meds, symptoms, sleep habits, BM's, fluid intake, pain, etc that can be put under the wrong cause and go untreated or treated poorly. You probably think you will remember these small bumps or annoying changes but really, that is unlikely. Keep in mind, everytime you change a time, dose or type of med or introduce a different med, you upset the PD apple cart until your body and mind adjusts. If you keep track of these details by writing them down, you will be able to give your doc better info and together you can get to improving your day quicker.
Please consider starting to write down some details about each day, maybe while eating breakfast or after dinner and bring it to your doc. Also, hear what Kenneth said and try not to put all issues under the PD umbrella without a discussion with your doc. about causes aside from PD. We can have better days if we try to keep PD simple and avoid the chaos it can bring to our lives.
Maria

December 9, 2023
A MyParkinsonsTeam Member

I was having dizzy spells that became worse as time past. I was blaming my Parkinson’s because it is a known symptom with roots in medication and orthostatic hypotension, etc..
I had three heart stents on November 27th, 2023 to clear up blocked arteries. I have nit had a single dizzy spell since and my orthostatic hypotension is also completely gone.
It was heart related, so be careful blaming it on the Parkinson’s, sometimes it is and sometimes it's not the problem.

December 8, 2023
A MyParkinsonsTeam Member

Hi Terry, l think you need to rethink what you mean by "exercise".
Exercise can be quite gentle and done while lying on a mat or bench. Consider TaiChi or Feldenkrais. Lex

December 7, 2023
A MyParkinsonsTeam Member

Do you get dehydrated or suffer from low blood pressure or blood sugar? Have you asked your GP why this is happening?

December 7, 2023

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