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As A Caretaker, I Find My Husband Gets Extremely Emotional Over Everyday Things. Do PD Patients Or Caretakers Share This Phenomenon?

A MyParkinsonsTeam Member asked a question 💭
NYC
January 19, 2016
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A MyParkinsonsTeam Member

Yes, I have PD and notice that small frustrations evoke intense frustration and anger. Can't speak for others, but I find it terrifying and humiliating to see myself not able to do simple things. And, I find I have already used up a lot of my patience reservoir just dealing with my body being the way it is, and sometimes that 'small thing' is the straw that breaks the camel's back.

On top of that, I definitely noticed a lessening in my ability to modulate my emotions, before I quit working: before PD, I could face deadline stress and be effective to meet what was needed; with PD, I would just start crying and not be able to stop, and my ability to focus on what I needed to do was gone.

So in my case it seems like a combination of hitting the end of my rope AND not being able to modulate my emotional state the way I could before. Kind of a 'perfect storm' setup for an emotional outburst.

On behalf of your spouse, I wish to thank you most sincerely for your steadfast care and patience, and to apologize from the bottom of my heart for what you are enduring.

January 20, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I must confess that I too used to put on an "act", especially when our family was around. I've given that up....it made me too tired and took days to recover. Now, what you see is what you get. I am out there like an open book whether they like it or not! Actually, I think it has helped me with my daughters. They tend to be more accepting and protective of me now. I think the thing that bothers them and my husband the most is my short term memory loss. I hate that too. Oh well....at least this way I meet new people and learn new things everyday! Hey, you have to laugh---sure beats crying.

March 2, 2016
A MyParkinsonsTeam Member

Hi, My husband has had PD now going on 11 years and not until the pas few months has he been emotional, I am not sure if it's his Parkinson's or the Dementia that makes him that way. Also lately he's been kind of clinging to me more, not sure why that is. I get emotional because of his kids, they think I can't take care of him or his personal, financial needs. This is getting so bad I am considering to seek an attorney . You see, this is Don's second marriage and my third. We've been married now going on 13 years and one of his daughter's thinks he shouldn't help pay any thing I have, it's a very long story. Don said one day (with tears in his eyes and shaking) he didn't want his kids to take him any where cause he was afraid they were going to either not bring him back or they were going to put him away. I have called a lawyer to see where we stand on this matter. Maybe he'll understand that they can't take him any where. I am not sure if this will help you or me! HA! but thanks for reading this. As far as me as a caregiver I do get very emotional a lot of time.

February 2, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, mood swings, anxiety and depression are all part of this disease all of us share. I also had these and now am feeling much better because of some meds that my Neuro prescribed. I hope you have a Neuro that you can talk to and be open with.

January 22, 2016
A MyParkinsonsTeam Member

Anxiety is an issue with Parkinson Patients . Talk to your doctor they have meds for that. Yes , moods swings affect us all . Be very understand and patient. Most Parkinson people that I know nap during the day. 4-5 hours at night.

January 21, 2016

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