Im 77 and in my 10 year of PD. We have had to move to be closer to doctor appointments for both my husband and myself. My husband has had a bad fall and can’t walk without a walker and I’m having to do much more. Not sleeping is a problem also and I can’t sleep in a bed anymore due to pain from sleeping hard in same position. I’m frustrated and sad.
I am almost your Parkinson's "twin"...diagnosed 2015 and really starting to know about it now, whereas 2 or 3 years back I was on a much lower dose and yet struggling far less.
I can only sympathise...both with symptoms and mood.
Have you tried an electrically adjustable bed? In a rare display of forward thinking I bought one a few years ago (post-diagnosis). It's not a magic bullet, but the ability to raise feet and head independently does give more positions to choose from, and for me at least, some of them offer benefits.
It may have been creeping up on you without you noticing then suddenly you realized and it seemed like it just appeared but at least you noticed; I had to be reminded for months before I remembered I didn’t have such a good memory as before. Your doctor should be told.
I should have read more than the memory part. Sadness can be caused by or exacerbated by sleep issues, and memory can be affected as well. You have what I call tarnished golden years, or a conglomeration of cares .
I’d ask how you’re doing but I kind of know., I was surprised to see your name first thing logging in. It’s been awhile, but it brought a smile.
I don't think the beds are particularly expensive...we picked up a pair of second hand single beds for as I recall about £300. This was when I was still with my partner so she used the other even though she didn't need it, for things like sitting up in bed watching TV...far comfier than just a pillow against a wall!
But, if cost is a barrier, you can experiment with bolster pillows for more control over your sleeping position...then you could decide if the improvement they offer is worth the investment.
Thank you for the😃 note
I don’t know why I didn’t try an electric bed. The chair that I do sleep in is one of the electric chairs and couch. Mabe should do the couch more.
I appreciate you offering ideas.
Ginny