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The last few years I have suffered much hip pain and I have been on a waiting list for a replacement hip. I was taking 300mg Stalevo total daily, but have reduced to 250 (50mg x 5 Times) + Mirapexin. (1 slow release nightly) in order to reduce severity of dyskinesia. Has reduced dyskinesia but also reduced mobility etc. and still prone to it when under stress. My surgeon witnessed this the day before my hi op was due and is afraid my uncontrolled writhing could put my new hip out and makes… read more
Linda. Bless you. I won’t complain after reading your message. I am 86 and no hip pain. But I am small, don’t weigh much, have exercised a lot for 20+ yrs and maybe that has helped my hips… read more
I was prescribed 25/100 carbidopa/levodopa for my PD tremors. Should I stop taking if tremors are my only symptom?
That is great bews Evan, thanks for sharing. Hope things stay this way for you forever, sincerely.
I will never forget it. I lost several weeks of living
my dentist prescribed 1 valium pill to be taken before my appt. didn't work, my dyskinesia was going full on. tried gas no luck still the same.
my husband suggested next time ehrn I go to the dentist to take 1 anxiety pill prescribed by my neurologist. I try not to take it, using Reiki and meditation. If need be I take a half pill and I sleep well. Anyone suggestions for me?
I don’t take any anesthesia at dentist office and I just let him get on it I’m convinced anesthetic makes me feel sick and shaky
I have advanced Parkinson's with my main symptoms being debilitating fatigue and dystonia in my legs. I had bilateral DBS surgery 3 years ago and then a Duopa pump added to the mix a year ago. The dyskenias are relatively new. I get botox shots in my mouth, neck and shoulder. These are partially for the dystonia in my neck and shoulder and partially for the dyskenias in my mouth. Recently, I have begin having dyskenias on a daily basis. I find them exhausting. How do you relax? Help
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I believe that I should include the past couple of years and the journey that I am on. I think the pandemic caused a lot of grief to many. I was no different. I think that it cut both my… read more
Ask your Neurologist!
It may be RLS 'Restless Leg Syndrome'. It can happen to any of us.
I have very severe, unlivable dyskinesias from Levodopa that i'm on for the past almost 10 years. I was told by my doctor that the only thing that will help is DBS surgery. Does anyone who needs DBS badly for dyskinesias not want it? How does a person live the rest of their life jumping around and not being able to function? Gocovri or any other medication does not help.
Thank you.
I’m cold ALL the time, but rarely shivers.
Every time my MDS tries to wean me off Mirepex, I get anxious. Anyone had success getting off this drug?
SOOINTERESTING; MANY THANKS!
